So seriously, anyone who has read this far?
I can't sleep. I'm so angry. I wrote a letter. Thoughts? Should I take out the "I'm so suing you" part at the end? I kind of think maybe.
Oh, and if you read all this too, you must be REALLY bored, but thanks.
I am in receipt of your letter dated August 18, 2009, informing me that you no longer wish to be my doctor. I found the timing of your letter quite odd, as your staff terminated our relationship back in May. My understanding at that time was that my request to delay my 16-week appointment made you and your staff uncomfortable, thereby necessitating the severance of our doctor-patient relationship. From your letter, it seems you may have been personally unaware that this occurred.
That confusion aside, I am writing this letter to inform you of an incredibly disturbing matter which was brought to my attention at my latest prenatal appointment with my new health care provider.
Following the laboratory tests ordered by your office at my 8-week appointment on April 1, 2009, I was assured that all of my test results had come back normal. My file indicates that the results were reported to your office on April 8, 2009. As I had struggled with the decision of whether or not to keep this baby, which I openly shared as I cried throughout my 8-week appointment, the news that all was well was incredibly comforting and helped me make the decision to bring this new life into the world. Assurance of my normal test results was given both over the phone by a member of your staff and at my 12-week appointment in your office on April 29, 2009.
Imagine, then, my shock to learn only yesterday, September 10, 2009, that I am heterozygous for the delta-F508 mutation. My new health care provider noticed this in my file, and also noticed that there had been no indication in the file that I was ever informed.
Your failure to inform me of this test result is inexcusable. You have known that I am a carrier for cystic fibrosis for five months; I am just finding out now, in my 31st week of pregnancy. You have taken away my options for genetic counseling, further testing, and a possible termination should my baby have the disease.
The incompetence shown by your office in this matter is astounding. I would have never made the choice to bring a child with cystic fibrosis into this world. [While my relationship with my daughter's father, who happens to be of Irish and German decent, has rapidly deteriorated in the past few months and I am uncomfortable tracking him down to ask for genetic testing at this point, I am quite certain he would have agreed to be tested in April. Either way, it is far too late to do anything should he also be a carrier.
]I can now only sit and wait and pray that my baby does not have the disease, while constantly facing her [strike:1 in 116] chance of being affected. This wait is excruciating, and the added stress during an already stressful pregnancy is unforgivable. Words cannot express the outrage I feel at you and your office for putting me in such a horrible predicament.
It is my sincerest hope that you will reevaluate your practices in light of the complete and utter mismanagement of the early stages of my pregnancy by your office. I especially hope none of your other patients are denied knowledge of, or in fact given assurances despite, extremely frightening test results.
Should you hear from me again, it will be through an attorney, likely because my precious girl has cystic fibrosis. I can now only pray it does not come to that.
Edited (new in brackets) based on poster comments