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Discussion Starter · #1 ·
I was just diagnosed with this & I am scared crapless. I just want to cry. How am I going to afford doctor bills & medicine? Everything I have read on this disease makes it seem hopeless.<br><br>
I don't smoke often... maybe a pack every 2 months, but as of today I will never smoke again.<br><br>
Here is a website with some info:<br><a href="http://www.phassociation.org/Learn/What-is-PH/" target="_blank">http://www.phassociation.org/Learn/What-is-PH/</a><br><br>
Does anyone else have this?
 

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Oh, sh*t, mama! How scary!<br><br>
Did you have any symptoms or anything?<br><br>
How did they diagnose you?<br><br>
I'm so sorry. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad"> I'll be thinking of you & your family!
 

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Discussion Starter · #3 ·
Thanks Mama!<br><br>
I went in for my yearly physical & my Doc heard something funny so he sent me to a cardiologist & they did an EKG & an ultrasound.<br><br>
I have the dizziness symptom big time.
 

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Sorry to read of you news-- I say get to a naturopath for some complementary care. As for insurance do you qualify for medicaid?<br><br>
take care<br><br>
PS I use to live in Spokane and Cd"A .
 

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Holy crap! <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug"> rachelle-a-tron<br><br>
I wish I knew the answers to "why me," but I just don't think there is one. I'm sorry this is happening. I second what mwherbs said, maybe there's stuff out there to help.<br><br><img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug">
 

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My childhood friend has it. Are they recommending the pump for you? It was experimental back when she was diagnosed, 12 years ago now, but she has been using it all of this time, and it has worked very well for her. If it is an consolation, she has also been on the organ donor list all of this time, but has yet to need a transplant.<br><br>
It is not fun to deal with. Keeping track of the medicine is a pain, but she said you get used to it.<br><br>
Good luck.
 

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Still thinking about you. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug">
 

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<a href="http://www.phcentral.org/medical/treatments/flolan.html" target="_blank">http://www.phcentral.org/medical/treatments/flolan.html</a><br><br>
I believe this is it.
 

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Discussion Starter · #11 ·
Oh wow. How very frightening. Thank you for the info. Ugh. I am stressing out.<br><br><img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/love.gif" style="border:0px solid;" title="love">
 

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<div>Originally Posted by <strong>rachelle-a-tron</strong></div>
<div style="font-style:italic;">Oh wow. How very frightening. Thank you for the info. Ugh. I am stressing out.<br><br><img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/love.gif" style="border:0px solid;" title="love"></div>
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Hi sorry to hear about your diagnosis, just wanted to say if you did want to see an ND like someone suggested I use Dr. Todd Schlapfer in CD'A and he is great! I know its not cheap though but he really helped me and DD a lot, and was worth every cent. Hope this helps if you go that route. PM me if you need any more info.<br><br>
Anna<br><br>
PS I came to the playgroup once but changed my yahoo ID and need to join again as I realized I was no longer a member with my new ID.
 

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<div style="margin:20px;margin-top:5px;">
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<div>Originally Posted by <strong>rachelle-a-tron</strong></div>
<div style="font-style:italic;">Hi Destinye! Thanks for the info!<br><br>
Heres the groups URL:<br><a href="http://groups.yahoo.com/group/spokanemoms/?yguid=95754031" target="_blank">http://groups.yahoo.com/group/spokan...yguid=95754031</a></div>
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Thanks! Hope you feel better soon, and find some solutions.<br><br>
Anna
 
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