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I've read that children with this aren't typically good at breastfeeding because it is too difficult to coordinate sucking. My son bf like a pro since right after he was born. He didn't need to be "helped" like my 2nd son (who didn't want to open his mouth wide enough). His oral probablems didn't really start to appear until around 20 months. Do any of you have any info on that or experiences with your own children?
 

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My 22 month ds was just dxed with apraxia. He needed oral therapy to learn to breastfeed: he didn't start eating after major surgery near birth until 9 days of age. But he was feeding well by the time we left hospital at 15 days. So he belongs in the 'early feeding problems but they were overcome' camp...
 

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My 4yo has SID, but no speech issues. We had some trouble getting bf going at first. He had problems getting a good latch so I got really sore nipples. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/yikes2.gif" style="border:0px solid;" title="yikes">: It took some help from a lactation consulant and then my nipples healed. He was a colicky baby and wanted to nurse every 2 hours. He became FTT at 9 months old, and is still not on the chart at 4. He did nurse until just past 2 though.
 

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Oh my, did we have to go through an ordeal to bf. Ds had an okay latch, but weak suck, what the LC called "butterfly sucks." He chewed me raw, I had bruises and blood blisters and the whole nine <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/yikes.gif" style="border:0px solid;" title="EEK!"> . We had to do suck training, use the SNS, and because of his weak suck my supply was next to nothing so I also had to pump and use herbs in addition to all the other rigamarole. At one week of life, we took him into the LC's office for a consult, and after 30 minutes of what we thought was good nursing, he had only taken in 16cc's of bm. It took three good weeks of working with him to be able to exclusively bf.<br><br>
He has SID, apraxia, low oral-motor tone and coordination, and generalized low tone.
 

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My DD was diagnosed with apraxia just before she turned 2 (a mild case, apparently - by 2 1/2 she had more than caught up to the average kid, though she does still seem to have some speech peculiarities.) She never had any major breastfeeding problems, but I don't think she had a very good latch. Nursing her was at least somewhat uncomfortable for me a lot of the time until she was a few months old. She had no problems at all with solid foods.
 

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Dd1 did not bf despite my getting lots of help and support, however she did drink bottles. She dripped milk out the sides of her mouth for months and had projectile reflux. Did not drink out of an open cup until late. She grew okay though, enough to avoid FTT but was small and thin. Was a late starter with solid foods and had gagging/texture/smell issues. Was dx with SID at 3.5 years old but did not qualify for therapy. She simply grew out of it. She began eating normally at close to 4 years old and has put on a lot of growth since then. She used to be very thin but has since become more of a normal weight. Still has "SIDdy" moments but overall doing great.<br><br>
I decided not to bf dd2 but I pumped for awhile. She too had milk loss while bottlefeeding. Also had severe, awful reflux and eventually needed a feeding tube due to feeding aversions. Was dx with SID at 6 mos. old and some related motor delays. Therapy and meds, as well as continuous drip feeds helped a lot. She has gotten over most sensory issues but some small ones still remain. Has also caught up with growth and development, except she's a bit behind with eating and drinking skills. She's getting better every day. Working on weaning from the tube. It's a long, slow process.<br><br>
Both of my kids were early talkers. There were never any concerns with language.
 
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