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Discussion Starter · #1 ·
My son is 15 months old and has had a c. diff infection for at least 4-5 months now. He was treated a month ago with antibiotics for 2 weeks because he was losing weight. He seemed to be getting better and his stools were less frequent and less stinky. We rechecked his stool about 6 days after finishing the antibiotics and it's still positive. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad"> Now he's back to really stinky stools, more runny than before actually, very irritable(which I'm assuming is probably related to stomach cramps or something) and vomiting small amounts really frequently.<br><br>
Our GI hasn't contacted us yet, our primary doc sent the results to her. She mentioned before that if we didn't get rid of it the first time we'd have to talk about a more extensive course of antibiotics. He had an endoscopy done in November that also showed yeast overgrowth so I'm concerned about the antibiotics again. At the same time he can't be losing weight.<br><br>
What they can't explain is why he continues to get this infection. He's only been on antibiotics once and I haven't been on any since I've been nursing although I was on quite a few while pregnant. The doctor insists that wouldn't make a difference but I think that's the cause. Although of course it's in the past and I can't do anything now. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad"><br><br>
He's taking probiotics but I'm not sure how much I can give him for a max dose each day and if it's possible the probiotics could get rid of this without antibiotics? I do have a feeling though it's a pretty resistant infection. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad">
 

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High powered Bifidus or Acidophilus. Really. I got c. diff from my son. And grumpy/irritable does not even describe it. I thought I would lose my intestines through my bottom. It was HORRID. I've had two homebirths. I'd rather do that any day to have c. diff every again.<br><br>
And the abx they start with were EQUALLY horrid. Okay, maybe not QUITE. Anyway.<br><br>
The compounding pharmacist where we had to get my son's (he was 1 year and then again at 13 months) recommended an acidophophilus with 4 billion parts or something like that. I still have some in my fridge just in case. We used half a pkg every day or every other day. It worked well almost immediately.
 

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and coconut oil, as much as the kid can stand. eat it straight! if this link doesn't work, just go to pubmed.gov and search coconut oil candida. and homemade probiotics are much more powerful than store bought. <a href="http://www.ncbi.nlm.nih.gov/sites/entrez?Db=pubmed&Cmd=ShowDetailView&TermToSearch=17651080&ordinalpos=2&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum" target="_blank">http://www.ncbi.nlm.nih.gov/sites/en...ubmed_RVDocSum</a>
 

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We are in a similar boat. My eldest is 4.5 years and has been dealing with this for about 2.5 years. We had thought it was diet related and have been tinkering with it...I could go on and on.<br>
He has been taking two Culturelle and Florastor a day and it<br>
does not seem to be helping.<br><br>
Today I have reserved a box of VSL #3 which is a megadose of probiotics. Very expensive but many have had luck after a few months.<br>
We have done one round of anitbiotics but I do not want another for him.<br>
Also check out the book 'Bacteria for Breakfast'.<br><br>
Good luck and keep us updated.<br><br>
Brooke
 

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May I ask specifically what kind of antibiotics you have been given. When I had it, it was my understanding that there was only about two or three antibiotics that could help this. I had to take Florastor along with antibiotics to get rid of it. I drank a butt-ton of coconut water too to replace the fluids and nutrients lost. Flagyl was the antibiotic that triggered the infection in the first place, but I hear that some people are given that to try and cure it. Not sure how that works out.
 

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Discussion Starter · #6 ·
He was on Flagyl for 14 days.<br><br>
I had him in to see the doctor this morning. She called and talked to our GI who thinks maybe we just ran the c diff culture too soon after he'd been off antibiotics and it was a false positive. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/irked.gif" style="border:0px solid;" title="irked">: Uh, no. He's WORSE now than he was before, I know he still obviously has it. Besides, she's the one who told us to run the culture and now she's saying it maybe was just too soon.<br><br>
I know for sure it's still the c. diff unless he coincidentally picked up something like rotavirus as soon as he got over the c. diff but really what are the odds? I don't know where he'd have picked something new up!<br><br>
They're re-running the c. diff and if it's still positive she wants him on antibiotics for a month! <img alt="" class="inlineimg" src="/img/vbsmilies/smilies/dizzy.gif" style="border:0px solid;" title="Dizzy">:<br><br>
I want to give the probiotics a good try but in the meantime I can't risk letting him lose weight or become dehydrated in the process.<br><br>
ETA: I wonder if it's possible that our insurance would cover that VSL #3 or even any probiotics?
 

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Flagyl has a pretty high failure rate as a treatment for C. Diff...it tends to recur. I assume they are going to suggest vancomycin. I'd do it. Along with probiotics very particular to c. diff...florastor and culturelle. Klaire labs makes one that is for antibiotic usage that includes both those and might be good. Otherwise I'd give them both.<br>
I don't know what to tell you on doses. But I always assumed that antibiotics wiped it out. So I redosed a few hours after every single antibiotic dose.<br>
Andrew was 25 pounds and was taking 1 culturelle and 1 florastor. I think I alternated them one after each dose. I'd maybe if I had it to do over again do both after each. I don't know He also had about 3 tablespoons of coconut oil. We still had bacteria issues....and these weren't even c. diff.<br>
Right now he takes 2 florastor and a very heavy dose of other probiotics. This is without antibiotics.<br>
The florastor will hopefully help with the yeast so I'd do that heavy. And do culturelle too. My understanding is you can't over-dose on probiotics. But you could maybe contact Klaire labs about their antibiotic probiotic and find out how much might be ok for his age and weight.
 

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Discussion Starter · #8 ·
The GI wants to do the Flagyl again but I'm going to ask about the vancomycin instead. I'm also going to overdose him as much as possible on the probiotics and hope that helps. My poor guy! <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad">
 

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<div style="font-style:italic;">The GI wants to do the Flagyl again but I'm going to ask about the vancomycin instead. I'm also going to overdose him as much as possible on the probiotics and hope that helps. My poor guy! <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad"></div>
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Wow. Why would he want to continue with something that isn't working and may even be making it worse? <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug">
 

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In the hospital, for the pt's I've worked with, oral vancomycin seems to work the best of cdiff. I've read that vanco is not well absorbed orally, so it just works in the gut (not systemic) and that's part of why it works so well. Flagyl is a nasty one. Lots of side effects.
 

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Discussion Starter · #11 ·
Yeah, I'm not sure why she wants to do a longer run of the Flagyl but we won't be doing that. For one thing it tastes horribly and it's hard to get him to take it!<br><br>
He's doing a bit better the last couple days, only stooling 3-4x instead of 6+ but he's been throwing up more too. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad">
 

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This sounds like my son at 15 months.<br>
We are doing the VSL#3 up to a packet a day (today). My son has flare ups so I guess he has a borderline (not to us!) case. We are going to try and get the health insurance to pay for some of it....I mean WHY NOT? They will pay for infinite doses of antibiotics.....<br><br>
As far as dosing for probiotics my one fear (as I give my son 450 billion cultures with the VSL) is that there may be lesions where bacteria can enter the bloodstream. If he has had an endoscope test then they can probably give you that info. With that one caveat (or if he is immune compromised) probiotics is the safest route to go.<br>
There is a c diff support site google it and there is info on using charcoal which you can get a the health food store which binds to everything and takes it out. May be good to use? It does bind to everything including the good. Much more used in Europe for tummy aches etc. My sons next big flareup I plan on using it.<br><br><br>
Something that works for us during flareups is to tighten up the diet by taken out all common allergens not just what he can't usually eat. Also try no fats till he stops vomitting and a homemade electrolite drink....I sometimes add sea salt to watered down lemonade. I know this won't defeat c diff and maybe this won't work but I just get worried we then are expelling so much.<br><br>
monkaha: Do you know where the info on vancomycin only going to the gut is?<br><br><br>
OP Have you read Bacteria for Breakfast?<br><br><br>
Best,<br>
Brooke
 
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