Hi,
My dd has severe reflux. She's outgrowing it slowly. (you can read her story in my sig.)
It sounds like the Reglan is giving him side effects. My dd was on it a few times and it made her sleepy and grumpy, but many babies will jerk like you are describing. They don't usually recommend Reglan for babies who have any kind of neruo issues. Is your ds seeing a regular ped, or one who specializes in DS and other things?
If the Zantac is not helping him with acid burning, there are other stronger meds to try. Zantac is the first line of attack. After that there's prevacid and prilosec. My dd has been on prilosec since infancy. It made a big difference for her.
Kellymom has some good tips for dealing with reflux. You can get a reflux wedge. Those help a lot of kids. For more serious cases, like where a baby is aspirating and at risk of suffocation or pneumonia, there is a surgery called nissen fundoplication. It's drastic and has risks but it can also save lives in some kids with the most severe kind of reflux.
You can take the strategy of feeding smaller amounts more often. That will sometimes prevent the stomach from getting overly full and so the contents are less likely to come up. Has your ds had any kind of scans? Like gastric empty scan or swallow studies? If he has delayed gastric emptying this will make reflux a lot worse (the reglan helps some but not all kids). Bethanachol will help the stomach empty faster in some kids, if they cannot tolerate reglan. It worked briefly for my dd.
Come on over to www.parent-2-parent.com's forums. You will find LOTS parents of refluxers, many special needs kids, too.
My dd has severe reflux. She's outgrowing it slowly. (you can read her story in my sig.)
It sounds like the Reglan is giving him side effects. My dd was on it a few times and it made her sleepy and grumpy, but many babies will jerk like you are describing. They don't usually recommend Reglan for babies who have any kind of neruo issues. Is your ds seeing a regular ped, or one who specializes in DS and other things?
If the Zantac is not helping him with acid burning, there are other stronger meds to try. Zantac is the first line of attack. After that there's prevacid and prilosec. My dd has been on prilosec since infancy. It made a big difference for her.
Kellymom has some good tips for dealing with reflux. You can get a reflux wedge. Those help a lot of kids. For more serious cases, like where a baby is aspirating and at risk of suffocation or pneumonia, there is a surgery called nissen fundoplication. It's drastic and has risks but it can also save lives in some kids with the most severe kind of reflux.
You can take the strategy of feeding smaller amounts more often. That will sometimes prevent the stomach from getting overly full and so the contents are less likely to come up. Has your ds had any kind of scans? Like gastric empty scan or swallow studies? If he has delayed gastric emptying this will make reflux a lot worse (the reglan helps some but not all kids). Bethanachol will help the stomach empty faster in some kids, if they cannot tolerate reglan. It worked briefly for my dd.
Come on over to www.parent-2-parent.com's forums. You will find LOTS parents of refluxers, many special needs kids, too.
