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Discussion Starter · #1 ·
I am needing as much information as possible and am hoping you wise women will be able to point me in the right direction.<br><br>
I had an emergency hysterectomy in August after my daughter was stillborn at around 21 weeks. They removed the uterus but left the ovaries, part of the fallopian tubes and my cervix. I'm still trying to physically recover from that. Unfortunately, since then I have been suffering from debilitating pain in my ovaries. My dr. diagnosed me with large cysts in my ovaries and growing in what is left of the tubes. After the latest ultrasound, he thinks that I need to have my right ovary removed ASAP to keep it from rupturing and possibly my left together with what is left of the tubes. I am going in for another ultrasound today and will be meeting with a specialist tomorrow to discuss my options (unless it is deemed to be too dangerous to wait - then I will go straight to the ER at a large, state of the art hospital an hour away for a second opinion).<br><br>
The surgery, if they have to remove both ovaries, would send me straight into menopause. Does anyone have any good books/websites that they could recommend dealing with hormone replacement therapy (HRT)? I really want to look into what I can do with alternative medicines as the typical HRT stuff seems pretty toxic.<br><br>
And, if anyone has personal experience, I would love to read it. I'm still reeling from the loss of my daughter and the loss of my uterus. To hear that my body has turned on itself even more is incredibly hard. I can't imagine going into menopause. I'm not even 30 yet.<br><br>
Thanks in advance.
 

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I don't have much information on surgical menopause, but I just wanted to express my deepest sympathy for your tragic loss.<br><br>
I think you are absolutely doing the right thing by seeking a second opinion. Is there anyway that they can remove only part of the ovary(ies) and leave enough tissue so that they still function? I've seen that on a few patients that I've done ultrasounds on.<br><br>
Best of luck to you - you'll be in my thoughts <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile"><br><br>
poe
 

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I was dx with ovarian cancer at the birth of my daughter through emergency c-section ( allergic reaction to epiduaral) Anyway they were able to remove the tumor during the c-section, leaving all reproductive organs intact. However they found new growth on the other ovary 10 months PP when I was having non stop "periods" I ended up having to have a supra cervical hysterectomy. That is they took everything but the cervix's. That was my choice becasue I was afraid of everything "falling out" The tumor had spread to my uterus and was growing toward my tubes. So I am in menopause at the age of 24. I took premerian for about a week before I could research it. My regular doc is totally against it until you have been tested for what she calls estrogen sentivity. I guess if you are sentive you tend to have more female cancers. I have not looked into the whole estogen senstive thing. However I take black cohash for any hotflashes. Dont really have those anymore, and I bought a topical cream at our local health store. The one cream is natural estrogens and than a progestrene type cream. They were $20.00 a peice for like 1 oz but they have lasted me nearly 10 months. I take valerian root at night to help with the insomnia, not sure if it menopause realted but did not start until after the surgery. I would like to say menopause is not a big deal, but it is. I have to worry about older women issues now. Weight gain and brittle bones and dry sex. It is not fun but it is livable. If you need the surgery then have it done. Physically I feel much better now.
 

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I'm so sorry about the loss of your little girl.<br><br>
My experience shows that you can fight to save what is left after a hysterectomy...<br><br>
I had a hysterctomy at 30, ovaries were left intact. Several years later I suffered through several bouts of ovarian cysts. (That is excruciating pain, to say the least)<br><br>
Every 8 weeks I was doubled over in pain for 6-8 hours. Then I was fine. I finally could no longer bear the pain and agreed to have my left ovary removed. The doctor wanted to take both out "since he was already in there" and I declined. I did not want to be thrown into medical menopause. Turns out that I had a ton of scar tissue which was encapsulating my left ovary and made ovulation nearly impossible, and very painful!<br><br>
About 5 years later I again felt that horrid pain, on my right side. I figured that it would go away and I would be fine in a few hours. I wasn't. It turns out that I had appendicitis and went to ER. That surgeon also wanted to remove my ovary since "he was there" but I absolutely forbade him from touching it! I was so glad that I did! He later told me that he "cleaned up" my ovary by removing the scar tissue that had adhered to it.<br><br>
I have not had a problem with it since that time and it was 4-5 years ago. I'm so glad I fought to save my only remaining ovary.<br><br>
You may have scar tissue adhesion problems as I did. If that is the case, your doctor can clean you up, as they say, and you would not have to be thrown into menopause.<br><br>
I currently "supplement" my lonely little right ovary with Bio-Identical Homones. This is the only way to go, if you need them, IMHO. I use a patch called Vivelle Dot and it is covered by my insurance. I also use progesterone cream at night, which can be bought at the health food store, or through a compounding pharmacy.<br><br>
That is just my opinion and it worked for me, but everyone is different and you may feel that taking them both out is right for you. Either way you should definitely look into bio-identical hormone replacement.
 

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Discussion Starter · #5 ·
Thank you, everyone, for your thoughts.<br><br>
According to my doctor, the right ovary has to come out. It has three large cysts in it and it is in imminent danger of rupturing. He isn't sure about the left ovary. The specialist needs to look at the ultrasound and we will discuss my options more tomorrow. My doctor said that if there is any chance of saving it, they will do all they can, as throwing me into menopause is not what they want. However, I want to be as prepared as possible for any outcome. He also said that the level of pain I am experiencing (2 weeks a month of being in constant pain to the point of incapacitating me) suggests that both ovaries are in bad shape. No matter what they suggest tomorrow, I will be getting a second opinion.<br><br>
Thanks again. It is so hard to be facing another horrific abdominal surgery with a 6 week recovery (they can't do it laproscopically due to all of my scar tissue and documented adhesions from 2 prior c/s and the emergency hysterectomy). My children need their momma to be back to normal.....and I'm still pretty far from it.
 

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Discussion Starter · #6 ·
I received a call today that I have to go have the surgery tomorrow. I am seeing another specialist tomorrow morning first, but it looks like it is necessary. The doctor today was pretty adamant that he would do everything possible to save my left ovary but the right one had to go.<br><br>
Please send positive thoughts/prayers towards my family!
 

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I'll be thinking of you, mama! I hope everything goes well!
 

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I'm so sorry you're having to go through this. I'll be thinking of you and praying that your left ovary puts up a good fight <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile"> Let us know you're ok when you're back home. Best of luck.
 

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I hope everything went/is going well!<br><br><img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug">
 

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Discussion Starter · #11 ·
The second specialist that I saw this morning decided that the surgery could wait until early next week. That way it is not an "emergency" type situation in which it is more likely for bad things to happen. Part of me is extremely glad because I really don't want to have the surgery. But the other part of me wishes it would just be done and over with....<br><br>
Thanks again!
 

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I had to have a hysterectomy when I was 26. They had to take everything(female organs)because I had VERY bad endometreosis.My GYN told my husband post-op that my insides looked like they had been dumped on with a pepper shaker<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/yikes.gif" style="border:0px solid;" title="EEK!"><br>
The last ten years have been up and down for me with hormones. I have been on several synthetic hormones from my doc,including premarin and Vivelle Dot patch. I then hate taking them(Premarin= horse urine)so I go off and try to take natural supplements.Because I have no ovaries or anything the hot flashes are HORRIFIC. I am now using a progesterone cream made "for me" from pharm. company and a Black Cohosh menopausal supplement. It's working okay,though I do still have breakthrough flashing.The best I know to tell you is to educate yourself well before deciding which way to go as far as HRT....the information out there can be overwhelming.Also,if you go the natural route I highly suggest getting on a good multi,B complex,and most importantly calcium,which will help protect you from osteoperosis since your body will be void of those natural producing hormones. Good Luck!
 
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