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Discussion Starter #1
Here's a pic of the patch test that was put on Nitara's back today:<br><br><a href="http://i68.photobucket.com/albums/i22/usamma/PICT1345.jpg?t=1173121013" target="_blank">http://i68.photobucket.com/albums/i2...g?t=1173121013</a><br><br><br><br>
Testing for wheat, rice (again after a possible reaction), cooked carrots (last time was fresh carrots), broccoli, white potato, and sweet potato. The foods were prepared and put on little disks and then taped to her back with a hypo tape. After 48 hours they will be removed and then after 72 hours they will be read in the doctor's office. This is testing for a delayed (IgG) reaction so that's why it takes longer. It can take some foods up to 5 days to have symptoms, but most will start to show up after 48 hours. Any reaction that shows up as soon as the tape is removed is considered more of an irritant but should still be avoided. Any reaction that is still present 24 hours after the food is removed is considered an allergy.<br><br><br>
So stay tuned . . I will be removing the patches on Weds and will post photos. Hoping for no reactions. We have to get this girl some foods she can eat without getting sick! She tested + to 8 out of the 10 foods tested on the last patch test. Those were mostly the top foods that people are allergic to, except I forgot to bring in the wheat flour. Other than wheat, hopefully these foods are at the lower end of the spectrum and she won't react to them. She trialed rice at home last week and started to show some reactions to it. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad"> I hope she can eat *something*!
 

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Interesting! I never knew that IgG could be tested on the skin. I look forward to seeing your pictures, but I also hope that Nitara isn't allergic to too many of the foods <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug"><br><br>
What kind of doctor ordered the test? (ND or medical?)
 

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Discussion Starter #3
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<div>Originally Posted by <strong>Chinese Pistache</strong> <a href="/community/forum/post/7474106"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">Interesting! I never knew that IgG could be tested on the skin. I look forward to seeing your pictures, but I also hope that Nitara isn't allergic to too many of the foods <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug"><br><br>
What kind of doctor ordered the test? (ND or medical?)</div>
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It's a medical doctor, an allergist. I would love to see a naturopath again, but we had to pay $200 last time and we can't afford to keep doing that. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad"> This disease is really complicated and a lot of it is out of their scope of practice. One we get it under control we might look into it again.<br><br>
This is the standard way to test for eos food conditions, although it's not 100% accurate. The next step is to get a clean scope/biopsy. The doctor said I could pick one food between now and scope,and if scope is not clear then we will know that it's probably a food she can't have anymore. If the scope comes back clean, we can try 3 more foods, wait, do another scope. And so on.<br><br>
Here's Nitara's last scope:<br><a href="http://i68.photobucket.com/albums/i22/usamma/PICT1214.jpg?t=1172900495" target="_blank">http://i68.photobucket.com/albums/i2...g?t=1172900495</a><br><br>
In pictures one and two, especially two, you can see the redness/swelling,fissures of her disease. I've heard that it looks and acts similar to how asthma is in the airways.
 

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All very mild reactions just like last time, but more than I was expecting. Just to give you a comparison, here's a patch test I found on the internet with <a href="http://www.karger.com/gazette/67/Ring/images/ring_6.jpg" target="_blank">strong reactions</a>. Nitara's are more irritants with the sandpapery eczema rash, but that can still cause her to have the inflammation in her esophagus if she were to eat these foods every day. She goes in tomorrow to let the doctor look at it. By tomorrow they will all have probably faded except for rice. That's why I took photos.<br><br><br><br>
The reactions in order from most to least severe:<br><br>
rice<br>
sweet potato<br>
brocolli<br>
carrot<br>
wheat<br>
white potato<br><br><br><br><a href="http://i68.photobucket.com/albums/i22/usamma/PICT1361.jpg?t=1173292994" target="_blank">Her whole back</a><br>
Left side and going down: white potato, sweet potato, brocolli.<br>
Right side: wheat, rice, cooked carrots<br>
The carrots and brocolli where two of her favorite foods and she ate them all the time.<br><br><br><br><a href="http://i68.photobucket.com/albums/i22/usamma/PICT1359.jpg?t=1173292749" target="_blank">Left side</a><br>
white potato has no reaction at all.<br>
sweet potato and brocolli have a reaction<br>
(the little circle indentation from the disks don't count as reaction. We are looking for rash or sandpapery texture)<br><br><br><a href="http://i68.photobucket.com/albums/i22/usamma/PICT1358.jpg?t=1173292894" target="_blank">Right side</a><br>
wheat, surprisingly, shows little to no reaction. There are three small bumps that might be a reaction but it's really tiny.<br>
rice shows the biggest reaction of all<br>
cooked carrot has a small reaction (you can see it better in the first pic)<br><br>
With this test we feel that her safest food is probably white potato, although we can't ever be 100% certain. It isn't looking real good right now as far as her ever getting off the elemental medical food/formula. Hopefully with time she will outgrow some of these.
 

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With all the redness where the disks were not touching, I'd venture to guess that she's reacting to the tape they used too.<br><br>
I don't remember... have you had IgE testing done at all?
 

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Discussion Starter #6
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<div>Originally Posted by <strong>WC_hapamama</strong> <a href="/community/forum/post/7497986"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">With all the redness where the disks were not touching, I'd venture to guess that she's reacting to the tape they used too.<br><br>
I don't remember... have you had IgE testing done at all?</div>
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Yep, that's true about the tape-- but the areas in the circles are the food reactants. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad"> I am not sure I want to this test again-- taking the tape off was torture even though I tried to do it gently.<br><br>
She has had IgE testing as well. She has reacted to some things with both tests, but more IgG things. As is typical of the disease.
 

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<div>Originally Posted by <strong>wendy1221</strong> <a href="/community/forum/post/7507529"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">Yay for white potato!!!</div>
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Ditto!<br><br>
And I hope that since her reactions were less severe than they could have been that she'll be more likely to outgrow them.
 

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Thanks for being happy for her. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile"> I gave her some for lunch and she just ate them up like they were the best thing she had ever eaten. It was so good to see that.<br><br>
The allergist said that the other foods were just irritants, the rice was the only allergy. So after a clean scope we can pick 3 foods to trial and see how that goes. I'm glad she didn't react to wheat. That would be great if she could have wheat back eventually.
 

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<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug"> Nitara.
 

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This is interesting... I've never heard of this test. Are you only testing things which are negative for IgE or are you starting all over again from scratch? If it were me I'd be itching to test higher nutrient foods such as eggs and raw goat milk.<br><br>
What is the view on Rotation Diets and EOS?<br><br>
Poor bunny, having to do all those scopes!! <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug">
 

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<div>Originally Posted by <strong>JaneS</strong> <a href="/community/forum/post/7527884"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">This is interesting... I've never heard of this test. Are you only testing things which are negative for IgE or are you starting all over again from scratch? If it were me I'd be itching to test higher nutrient foods such as eggs and raw goat milk.<br><br>
What is the view on Rotation Diets and EOS?<br><br>
Poor bunny, having to do all those scopes!! <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug"></div>
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We are testing both. Eos is related to IgG only . . but she has also tested + for IgE stuff. Also has asthma, eczema, who knows what else?<img alt="" class="inlineimg" src="/img/vbsmilies/smilies/dizzy.gif" style="border:0px solid;" title="Dizzy">:<br><br>
Her last test was for soy, eggs, dairy, oats, corn, raw carrot, apple, nuts, some other things (10 total-- will have to look at the records). The only two she didn't react to were apple and raw carrot. She's not getting any dairy of any kind for a long time. We may trial her at age 5 or 6. She's also lactose intolerant at times (temporarily when her gut is inflammed) so again, no dairy of any kind.
 

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I ask b/c it is my understanding that Rotation Diets are designed especially for IgG allergies?<br><br>
My little guy reacted to 25 foods thru intradermal testing. And I don't know how many of these allergies for him are IgG, probably not as they didn't react days later to the intradermal test? (Welts stayed for days on a few things like peanut, coconut, amaranth, quinoa which we are totally avoiding.) Not sure. Do you have any knowledge on that? Because I would assume all his allergies are IgE since he got a welt?<br><br>
My understanding is that if he just ate the foods he didn't react to every day, he would become allergic to them as well. I needed <b>a lot</b> of convincing to try the Rotation Diet but thank goodness I did. (Plus enzymes with every meal too which break down foods and therefore less chance of immune system reacting.)<br><br>
Any info on enzymes and EOS? I really think every kid who is food allergic should be on them, the science just makes sense. If you cannot break the foods down properly, that means the immune system reacts to the whole proteins. If the proteins are broken apart by the additional enzymes into their essential components and amino acids, therefore the immune system will be less like to see them as invaders.<br><br>
Is she still on reflux meds to reduce acidity? That just sets up the digestive process to not be able to digest proteins as well.... the acidic ph of stomach is a requirement for proteins to be split into amino acids.
 

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I'm actually surprised that they are pushing for foods so soon. It seems like most of the kids I've seen posts about dealing w/ eos were on no foods for quite some time to allow their guts to heal. Has she had another scope recently that was clean? It seems strange to start introducing foods before you've even reached baseline. I'm not criticizing at ALL, please don't take this post to be that. I can only imagine how hard it must be to want to eat and only be able to drink nasty tasting formula. It must be awful. It just conflicts w/ everything I've ever read about eos.
 
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