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Are there any tests you would recommend running on child with suspected SPD/ASD? We have an OT eval next week and are 6 months away from a holistic developmental ped. appt who will not only asess for ASD/SPD/ADHD/anxeity etc, but will do allergy and vitamin testing and recommend a nutritional plan.<br><br>
But, I'm wondering if there are any other basic medical tests I should ask my general ped. about at DD's 4 year old well check. Blood sugar? (DD perseverates on 'treats' and am wondering if this could be a blood sugar issue) Iron? She had a lead test at 3 (came back normal), but has had no other blood tests.
 

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A hearing test for one. I don't think they can include the central auditory processing battery of hearing tests at that age, but at least rule out hearing problems as far as they CAN test at this age. Also a comprehensive eye exam. If you have them check sugar, also ask for a fasting insulin level since my sugar checked out fine for 17 years before they realized I had too much insulin (HUGE behavior/depression problems). Maybe also an EEG and/or sleep apnea test. I'm sure someone else on here has a more comprehensive list, though...<br><br>
I wouldn't bank on the allergy tests being be-all-end-all, either. Our allergist/immunologist told us that the best test was to remove a suspected irritant and look for a reaction because that would say worlds more than bloodwork and RAST testing. But maybe they'll give you a jumping off point. Have you kept a log on him to look for behavior patterns? Or phases of stuff going on?
 

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<i>The Mislabeled Child</i> lists these conditions as conditionsthat can mimic autism spectrum disorders include: auditory impairments (including auditory processing disorder), visual impairments, language impairments, attention problems, sensory processing disorders, and giftedness.
 

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i'm subbing.<br><br>
DS hasn't had any blood work since he was 9 months old. i think i'm going to ask our ped. to run anything and everything she'll let us for him. i am going to ask specifically for a gluten test as well.
 

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Our developmental ped ordered a bunch of tests as part of the diagnostic process: blood tests for chromosomal problems, metabolic disorders, iron, and lead; an EEG for siezure disorders; allergy testing; hearing test; speech eval; OT eval; and a psychological eval are what I can remember off the top of my head.<br><br>
Additionally there was a bunch of paperwork to be filled out: we (DH & I), preschool teacher, and the speech therapist all filled out the GARS (Gilliam Autism Rating Scale). We all scored DS very similarly, within a couple of points of each other, which showed that his issues were consistant even in varying environments.<br><br>
The whole diagnostic process was very thorough and took about 6 months to complete.
 

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<div>Originally Posted by <strong>Lollybrat</strong> <a href="/community/forum/post/14735632"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">Our developmental ped ordered a bunch of tests as part of the diagnostic process: blood tests for chromosomal problems, metabolic disorders,</div>
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I think they all do "complete genome hybridization" now (or at least that's what the neuro told me) and I know Fragile X is one of the things they're looking for with that--but I don't recall the other chromosome problems they look for with it.<br><br>
What did they order to determine metabolic disorders? I think we might be interested in that. Ds is CLEARLY affected by foods.
 

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<div>Originally Posted by <strong>heatherdeg</strong> <a href="/community/forum/post/14735793"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">I think they all do "complete genome hybridization" now (or at least that's what the neuro told me) and I know Fragile X is one of the things they're looking for with that--but I don't recall the other chromosome problems they look for with it.<br><br>
What did they order to determine metabolic disorders? I think we might be interested in that. Ds is CLEARLY affected by foods.</div>
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I'm not sure exactly what tests they ran. I remember that they took A LOT of blood. They did look for Fragile X. But the developmental ped was a little annoyed that I had refused an amnio while pregnant and wanted to check for other chromosomal issues as well. (DS had a cystic hygroma in utero which can sometimes be an indicator of chromosome problems.) As for the metabolic disorders, I really don't know all of what they checked for. There is a family history of thyroid problems, but I remember the DP saying that she wanted to test for "thyroid and other metabolic disorders". I don't know what was included in that. At the time of the testing I was too overwhelmed to ask for a lot of details. When the blood tests all came back normal, I didn't see a need to ask then. Sorry.
 

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<div>Originally Posted by <strong>heatherdeg</strong> <a href="/community/forum/post/14735793"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
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What did they order to determine metabolic disorders? I think we might be interested in that. Ds is CLEARLY affected by foods.</div>
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If a child has markers for metabolics (my link on signs <a href="http://www.mothering.com/discussions/showthread.php?t=734501" target="_blank">here</a>) a doctor would run the tests listed under metabolic screening in blood and urine <a href="http://www.umdf.org/site/c.dnJEKLNqFoG/b.3752521/k.EB44/Diagnosis.htm" target="_blank">here</a>. All are fasting labs.<br><br>
You could instead have the doctor run a metametrix urine test. It's not a formal metabolics test but it does pick up metabolic issues (including the autism associated ones) and interprets the tests and recommends treatments for the doctor...which is really helpful in metabolics. Unless the child is sick/declining I think this might be a better option for most people. You often have to travel to see someone good in metabolics and this is just a urine sample. That test found all the stuff in my son that the labs listed above did and suggested the same treatments with far less invasive and expensive testing.<br><br>
OP, this is likely something your holistic ped. can order for you. I'd do the <a href="http://www.metametrix.com/content/DirectoryOfServices/0091OrganixComprehensive-Urine" target="_blank">metametrix comprehensive urine</a> and their <a href="http://www.metametrix.com/content/DirectoryOfServices/DNA-Stool-Analysis-GI-Effects" target="_blank">GI effects stool</a> too. These tests have been so helpful to us. I wish we had known about them at the outset. We would have been able to help my son so much sooner.<br><br>
I'd do a visual processing assessment if you can (by a dev. optometrist/opt. who does vision therapy).
 

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Thanks, everyone. : hug I will look into which ones my general ped can run and re-read the details on what the dev. ped. recommends.<br><br><div style="margin:20px;margin-top:5px;">
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<div>Originally Posted by <strong>heatherdeg</strong> <a href="/community/forum/post/14735041"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">If you have them check sugar, also ask for a fasting insulin level since my sugar checked out fine for 17 years before they realized I had too much insulin (HUGE behavior/depression problems).</div>
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Would you mind sharing more about your experience with insulin and behavior issues/depression? I wonder if this could be part of what's going on with DD.
 

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Sorry to hijack your thread<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/redface.gif" style="border:0px solid;" title="Embarrassment">... I definitely think there is a food allergy and/or blood sugar issue with both me and my son. I've eliminated gluten for about 6 months and seen elimination of stomach pain and headaches, for example. I am slowly reintroducing it and when I overdo it I notice. So ds is next.<br><br>
? about gluten test: I got the results of J's blood test a few days ago for gluten and casein and the allergist reported it was "negative". First of all isn't a continuum, not a specific "yes" or "no". Now that he has been tested while on a diet allowing gluten and casein, don't I need to retest after witholding gluten and casein and compare?? (How long on a gfcf diet before testing? What if he is given s.t. with gluten or casein accidently at school- will this negate the test?) This allergist scoffed at the whole idea of him being sensitive to gluten or casein anyway, and only ordered the blood test at my insistance, so I can't really trust that he interpreted the results or followed all steps in this process accurately, ykwim?
 

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<div>Originally Posted by <strong>beachbaby</strong> <a href="/community/forum/post/14739667"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">Would you mind sharing more about your experience with insulin and behavior issues/depression? I wonder if this could be part of what's going on with DD.</div>
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My mother is/was a severe bipolar and it made for a rough childhood. I moved to my dad's when I was 12yo as a result. When I was 13yo and puberty set on, I suddenly gained 30lbs. in a year and started having depressive episodes. VERY easy to blow off to: 1) taking a bus to school instead of walking; 2) dealing with the transition from being the parent to HAVING a parent; and 3) just being a teenager. As it got worse, though, they added the potential for inherited mental disorder from my mom.<br><br>
Everyone checked my sugar. It was always fine. When I was 19yo, my father's holistic physician ran a 6-hour Glucose Tolerance Test. It found me to be "mildly hypoglycemic" (this is apparently a common misdiagnosis of hyperinsulinism). And at this point, I had been on depression meds that never fully did the trick. I had been in counseling for easily 3 years already. Both continued for another 9 years. But nothing ever really helped the depressive episodes completely. The depression and weight gain (very rapid and excessive--at one point, 60 lbs. in 6 mo) continued. I had one point in my life though where I had such a crisis that my body did a 180 and I lost a LOT of weight--I got to the thinnest I had ever been in my LIFE (a size 4--and I had been an 8 even in high school). After that, I went a good 2-3 years at a size 6. I was still in therapy and I had stopped the meds. But it ended when I got engaged and within a year had to renovate a home and plan a wedding (which threw off how I ate and my stress levels). As time went on, I had debilitating bouts of fatigue. I spent 2 years going from doctor to doctor complaining about the fatigue. They tested everything--including doing a radioactive scan for hypothyroidism. They even put me back on anti-depressants (and then told me that was what was making me tired <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/irked.gif" style="border:0px solid;" title="irked">). They finally told me it was all in my head. And at that point, I almost thought maybe they were right. I mean, what else could it be?<br><br>
I had been a few years without a Pap and went to see a new ob/gyn. While taking my history, he dx'd me with hyperinsulinism and went on to finish my history for me with pretty complete accuracy. I cried. His bloodwork tested my fasting insulin level. Apparently it was supposed to be 10 or lower and it was 22. He put me on metformin. The fatigue instantly disappeared. I subsequently had 2 miscarriages and the perinatalogist I was sent to told me I was undermedicated for the insulin problem. He increased the dose and the weight started coming off without a single change in diet or activity. And I have never needed another anti-depressant. It's been 8 years.<br><br>
After my son was born & I was nursing, that same holistic physician that did my GTT years before found me a natural version of metformin that actually worked better. I've been on that for almost 6 years now. If I slip up on taking it, I notice I get bad PMS.<br><br><br><br><br><div style="margin:20px;margin-top:5px;">
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<div>Originally Posted by <strong>ericswifey27</strong> <a href="/community/forum/post/14845930"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">? about gluten test: I got the results of J's blood test a few days ago for gluten and casein and the allergist reported it was "negative". First of all isn't a continuum, not a specific "yes" or "no". Now that he has been tested while on a diet allowing gluten and casein, don't I need to retest after witholding gluten and casein and compare?? (How long on a gfcf diet before testing? What if he is given s.t. with gluten or casein accidently at school- will this negate the test?) This allergist scoffed at the whole idea of him being sensitive to gluten or casein anyway, and only ordered the blood test at my insistance, so I can't really trust that he interpreted the results or followed all steps in this process accurately, ykwim?</div>
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TOTALLY kwym and seriously so done with those kind of drs. We've been gf/cf (plus soy and corn-free) for many years now, but my recollection of the research I did then sounds like you're on the right track in regards to the gluten and I would do more looking into this. I remember that we had concluded that testing for gluten was not useful or necessary. A subsequent allergist noted the same, telling us the best test was to remove the suspected irritant and look for a reaction. He told us this because at the time, ds was not even 1yo and this allergist noted that the tests were unreliable for kids under 2yo because their immune systems were still "cycling". He believed in the reaction, though. In fact, he'd seen my son 3 weeks before we removed casein and again 2 weeks after because I ran to him asking if the change was all in my head. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/redface.gif" style="border:0px solid;" title="Embarrassment"><br><br>
But I think that where gluten is concerned, you're right that it matters if you're currently eating it or not. There's info out there on this--I would check more if you're going to do actual tests vs. "remove and look for a reaction".
 

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gluten allergy is diferent than celiac disease which is diferent from an intolerance.<br><br>
there is no tets for intolerance except for trying a stirct avoidance diet for a good long stretch and seeing how it does. there are bloog tests for allergy and for celiac, but from your post it's hard to know what the allergist ordered. You should definitely request a copy of the lab report for yourself, then you'd know what tests were ran what what the results really were, and you could pass that on to his other Drs.<br><br>
Before my boy's autism diagnosis, he had a full speech assessment, OT assessment, and audiology testing. After the autism diagnosis, we did metabolic and genetic testing, allergist, gastroenterologist (including endoscopic biopsy), MRI, EEG, all the diet and mercury and supplements stuff that was out there at the time, including sending blood and urine to specialized labs all over the place. (he turns 7 this week)
 
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