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My son is 11 months 2 weeks old, he was born having apnic seizures. Due to some brain injury by result of these he also has some major motor setbacks as well as a visual impairment. We have been getting much help from doctors and therapists, but it would be great to talk to some moms that've been through this or are going through this.
 

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My dd is almost 16 mos and suffered a series of strokes before birth and had seizure activity her first night. The MRI showed a couple of spots of brain damage. She's been on phenobarbitol since then. She had some staring spells last summer, and we raised the meds a little. The seizures have been otherwise very under control.<br>
She's pretty delayed, but making progress. She's very hypertonic on her right side, we think maybe mild CP. Her arm is worse than her leg. She doesn't use the right hand at all, but she took her first steps a couple of weeks ago. She falls often, and (I shouldn't laugh, but sometimes I do) she tends to walk in a circle because of the differences between the two legs. We may get an AFO for her leg, but we're waiting right now since she's made so much progress since her birthday.<br>
Her speech delay is the worst. She didn't babble AT ALL until 12 mos. (I've been trying to get ST since 6mos, and just started it this month....grrrrrr) She still doesn't make alot of sounds, but she's finally jabbering regularly. We <i>think</i> she says Dada. I haven't heard Mama yet though. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad"><br>
Her comprehension and receptive speech are pretty good though. She understands alot of what we say, and even follows some directions. We're starting to do Baby Signs with her, and I'm really excited about that. I wish we had started earlier. She does "milk" "want" & "cereal" pretty well now. We're having to adapt some of the ASL signs since she doesn't use her right hand, but it's still working well.<br>
We think the brain injury hasn't affected her too much cognitively, but she has alot of trouble sustaining attention, even at an age appropriate level. Right now, it just means she's a busy baby, but later ADD could really turn into a problem. One step at a time though.<br><i>Please</i> PM me if you want to talk sometimes. I'm always looking to connect with moms going through similar things.<br>
Blessings!
 
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