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Discussion Starter · #1 ·
After doing like 5 minutes of research, I have the stinking suspicsion that My dh, my ds (4) and I all have Sensory Processing Disorder.

Its just so plain and obvious to me. It all makes sense now! LOL.

So what do we do about it? I have found info on how to have a child treated but nothing about adults. Do you treat adults?

Jenny
 

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DH and I were just discussing this tonight too. After years of trying to figure out DD and her various emotional/behavioral difficulties (and having suspected sensory issues for a while) my MIL just blurted out, "Well, honey don't you remember you had perceptuaal motor difficulties and we took you for OT twice a week for YEARS at the children's hospital?" Um, HELLO this information might have been rather useful in getting DD the assistance she needs as well as in helping DH. Seriously, I don't understand why this info was not mentioned until AFTER I finally got an appointment for an OT eval at a center that specializes in sensory issues (after running into dead ends with a myriad of other professionals).

BTW, how is the Out of Sync Child. It's the next book on my "to read" list after I finish my current one about Sibling Rivalry (have to keep the kids from killing each other first, then I can move onto the sensory piece).
 

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Personally, I like "Sensational Kids" a bit better than the Out of Sync Child, because it's got a bit more 'science' behind it (and that's my bent).

But I've read the three major books on Sensory Processing Disorder - The Out of Sync Child, Sensational Kids and Raising a Sensory Smart Child - and any of them is useful. The Out of Sync Child might be better for a general intro to the concept, and Raising a Sensory Smart Child has more info on younger children.

I've actually asked our OT about info adults - dh definitely has some sensory issues, and his aunt is over the top (extreme intolerance of smell, taste, touch, sight - and yet she teaches music
. Basically, there aren't any people who work with adults (or maybe like one clinic in the country?) - some of the things mentioned in the books (deep pressure, 'heavy' work, sensory tables) probably would work for adults too. Most adults have learned to compensate. The one thing that might help adults is the therapeutic listening. I've often threatened to do that along with our son because I'm extremely sound sensitive myself. And that's the one thing our OT said might be possible for adults.
 

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Lynn, I think I'm in love with you.


I just finished OOSC after reading Raising a Sensory Smart Child. Sensational Kids is sitting on my counter waiting for me.

What would help adults is probably based upon where their sensitivities are, just like kids. My DH is an SPD person all the way and I've found that really, really deep massage is as soothing to him **occassionally** as it is to DS. In adults, it just becomes annoying quirks to the majority of them I guess.
 

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Quote:

Originally Posted by MARIE View Post
Hi! I have a 7 year old son with SPD. We figured it out about 3 or 4 years ago. I would love to help out with where to start or just swap stories.
I would love to hear about how your DS is doing now at 7yo. My Ds 3.5 started OT a month ago and is making amazing progress (he's a seeker) We start speech soon hopefully. How does your son cope and how's he doing in school (or unschool
)?
:
 

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Originally Posted by Jennifer3141 View Post
Lynn, I think I'm in love with you.
.
Just don't tell my dh!
He's been sick all week and can't even stand to have me touch him. SPD in adults anyone??
 

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Jack
Forgive me, but I am new at how to use this board and all the abbrv. My son(is it DS) is doing much better since the three and four's. For him it is tantrums and resistance with doing things. At 3 and 4 it was all the time for everything. It was so so tiring. He wasn't a seeker but fit the problems with clothes, socks, noises, smells, touch, etc.. He is delayed with fine motors due to avoiding all those things like playdough, legos, scissors etc.. In fact, I had him in preschool where he had a rageful fit when one time a teacher tried to put a smock on him without a warning and ok from him. Another time they were forcing him to cut out something and he flips over scissors.. another time it was transitioning in from the playground.. they couldn't catch him.. another time it was the smell of some food..

It got better in those ways because as his speech developed (that was delayed also) and he learned to reason and use words.. he just told me what it was. He also learned to cope with those feelings of clothing and shoes.

We found peer pressure helps to a point that he did not want to have his friends see him get upset, but we have had two big tantrums in 1st grade and he felt horrible about himself. One was due to no one helping him with the fire alarm and the other was out of the blue.. who knows why.. he said it was too noisy in the room and his pencils kept falling.

My point is some things just get plain better, but other problems don't yet. He is in public school and no one really understands special needs so what happens when these kids are mainstreamed, they get lableed as bad kids.

He struggles with handwriting and anger/fustration. He gets fatigued with the demand of the work and just to cooker cutter fit in for 6 hours. He looses it. He has an OT, but the problem for us is the regular teachers are CLUELESS. They don't accept it and they sure don't know how to create anything adaptive or accomodating. Self esteem has become our problem and the shcool has been on my case about him capable of hurting someone.

These kids MUST have and IEP or Child Study Team. If your DS is 3 1/2 and your are thinking of public or private start the intervention through your District now. I missed this big step! Than your DS has help and a support system with professionals all in play when he gets to kindergarten.

I have so far found that the teachers want my DS on Ritalin to help him calm down and focus. His grades are great, but he is all over the place trying to keep it together. Its amazing how they don't understand.

I am glad to help you through steps.

I am considering homeschooling. I really am concerned about how hard this is going to get for him esp his self esteem.

I am always in the principals office and its so tiring when the school refuses to created adaptive strategies to help a child. A special education teacher is a life saver. Get to know a few of them. They'll know more than you about your DS.

Marie
 

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Quote:

Originally Posted by LynnS6 View Post
Just don't tell my dh!
He's been sick all week and can't even stand to have me touch him. SPD in adults anyone??
Our OT had me fill out a questionairre about our family since SPD has strong family "tendencies." I burst out laughing at the first THREE questions about DH and she looked at me and said, "I don't think you need to continue with that one."

I didn't realize until that piece of paper how very intensely DH had sensory issues until then. I just worked around it but holy cow!
 

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Discussion Starter · #12 ·
I am new to this, but I wondered, can you go from one extreme to another? I go from needing extreme stimulation, to needing to chill out. I wonderr if thats my brains way of trying to level out.

I still cannot sit in extreme silence. It urks me. I dont feel so weird anymore!

Jenny
 

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Originally Posted by transformed View Post
I am new to this, but I wondered, can you go from one extreme to another? I go from needing extreme stimulation, to needing to chill out. I wonderr if thats my brains way of trying to level out.

I still cannot sit in extreme silence. It urks me. I dont feel so weird anymore!

Jenny
Oh yes!! And for those of us with kids like that, it can be incredibly hard. My DS has vestibular problems and is nonverbal. Sometimes he needs *something* but it's incredibly hard to determine if he's upset because he's not getting enough motion or if he feels like he's getting too much.
 

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We've always known our son had sensory stuff going on (like both his parents) but we finally got him evaluated last week. I get the report tomorrow.

Quote:

Originally Posted by transformed View Post
After doing like 5 minutes of research, I have the stinking suspicsion that My dh, my ds (4) and I all have Sensory Processing Disorder.

Its just so plain and obvious to me. It all makes sense now! LOL.

So what do we do about it? I have found info on how to have a child treated but nothing about adults. Do you treat adults?

Jenny
 

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Thanks so much for the info Marie!

DS (yes that means dear son) has been in IEP since April and it's been helping but understanding the sensory stuff with an outside OT has been amazing. It's really opened my eyes to seeing that maybe, just maybe my DS just (ha ha..Just!) has sensory issues and isn't on the spectrum. I'm going to give him until the end of summer before we start down that road.

Thanks again! I hope that when he hits mainstream I'll be able to deal with his teachers. I plan an overwhelming them with info
 

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Hey, Jenny!!
My little one is moderately gifted (if we had to use a label) and I'm finding that many of these children have sensory issues. I'm the same way and am still dealing with sensory stuff at age 31..

Yes, I think they can be sensory seeking at times and avoiding at others because my son seeks stimulation but avoids things like textures and so forth when it comes to clothing..

I'm kind of new to all this because, while I've known about his sensory issues for years, they didn't cause a problem because we unschool. I only took him in recently because I wasn't seeing an improvement in a few issues and had read somewhere that it was best to get therapy before age 7...
 

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Discussion Starter · #18 ·
I just noticed that Aspen has been avoiding stepping on cracks....LOL. I laugh because I do the same-but for me I dont have to pay attention to do it. If I do step on a crack, I can feel it through whatever I am wearing on my feet. without even looking at it.

Aspen is also very creative. He got out paint without telling me and when I went to check on him, he had painted a picture - half on paper, and half on sheets on the guest bed. I laughed, dh said gently "Try to keep it on the paper." I had to tell dh that sometimes the best part about the artwork is the part that squished off the paper and on the sheets.

I dont know what that has to do with sensory but it happened tonight and I thought is was cute. :p

Jenny
 
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