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Discussion Starter · #1 ·
DD has been threatening to extubate herself for a couple of weeks now, well yesterday she managed to pull her ventilator tube right out for the second time (the first time was right after birth). Luckily for her, her doctors decided to try her on CPAP rather than putting her back onto the vent. So far she's doing really well, not desating much - actually a little less than she was when on the vent - and she seems REALLY happy. Her doctors are really hopeful that she's not going to go backwards so I'm optimistic and excited that we're one step closer to going home!!<br><br>
Oh! We got our first photo of her whole face! <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/luxlove.gif" style="border:0px solid;" title="throb"> (which wasn't taken with my camera so I can't post it).
 

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Such a HUGE milestone! Congrats!! My kiddo would extubate himself quite frequently (he actually pulled his trach out tonight). Little buggers arent they?<br><br>
How is she doing in other areas? Are feeds going ok? Im assuming she hasnt been bottle or breastfeeding yet with the vent.<br><br>
Oh yeah and congrats on that photo <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile"> You will treasure that for a long time.<br><br>
I just looked at her pictures.. What a doll! And she looks so much better (healthier) on CPAP than on that darn vent!!
 

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Discussion Starter · #3 ·
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<table border="0" cellpadding="6" cellspacing="0" width="99%"><tr><td class="alt2" style="border:1px inset;">
<div>Originally Posted by <strong>Khourtniey</strong> <a href="/community/forum/post/8177307"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">Such a HUGE milestone! Congrats!! My kiddo would extubate himself quite frequently (he actually pulled his trach out tonight). Little buggers arent they?</div>
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Oh no! Are you able to put it back in or does it mean a trip to the doctors?<br><br>
DD gets this really cranky look on her face if she can't pull on it or if you move her hand away. Sometimes I swear she's giving me the evil eye <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/lol.gif" style="border:0px solid;" title="lol"><br><br><div style="margin:20px;margin-top:5px;">
<div class="smallfont" style="margin-bottom:2px;">Quote:</div>
<table border="0" cellpadding="6" cellspacing="0" width="99%"><tr><td class="alt2" style="border:1px inset;">
<div>Originally Posted by <strong>Khourtniey</strong> <a href="/community/forum/post/8177307"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">How is she doing in other areas? Are feeds going ok? Im assuming she hasnt been bottle or breastfeeding yet with the vent.<br><br>
Oh yeah and congrats on that photo <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile"> You will treasure that for a long time.<br><br>
I just looked at her pictures.. What a doll! And she looks so much better (healthier) on CPAP than on that darn vent!!</div>
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We're still tube feeding. I'm not sure what's the go with that, she'd be 34 weeks this week which is when I've heard you can start them bottle or breast feeding so I might have to ask about it. She's so little though, I'm sure one of my boobs is bigger than she is. We're still waiting to break the kilo mark.
 

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Awww, what a great milestone. I remember when emma did it. She went back on the vent once, but the second time coming off she came off with flying colors (although they try not to use cpap at my hospital so she went straight to nasal canula). Can't wait to see pictures of sweet erin with her cpap. You must be SO proud!!!
 

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That is great for Erin! One step closer to going home!! YAYAYAY!!! My girls would constantly pull out their ng tube and have it reinserted, oh that is an awful site! Alivea did it so much that she developed blood in her stool and they thought she was allergic to this and that. Finally once they left it out for a few days to try bottle feedings it cleared up...Good luck to you mommy and little Erin!
 

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What wonderful news! The pictures are great, and she is such a precious cutie. I hope she keeps making such good progress!
 

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Oh YEAH!!! I am so happy to hear that. What wonderful news. I remember when I first got to see DS's ENTIRE face. . .It is such a milestone, they look so different when you can see those little rosebud lips.<br>
Oh, I'm just thrilled things are going well for you and your family.<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/biggrinbounce.gif" style="border:0px solid;" title="bgbounce">
 

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<div style="margin:20px;margin-top:5px;">
<div class="smallfont" style="margin-bottom:2px;">Quote:</div>
<table border="0" cellpadding="6" cellspacing="0" width="99%"><tr><td class="alt2" style="border:1px inset;">
<div>Originally Posted by <strong>Le Bec</strong> <a href="/community/forum/post/8177396"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">Oh no! Are you able to put it back in or does it mean a trip to the doctors?<br><br>
DD gets this really cranky look on her face if she can't pull on it or if you move her hand away. Sometimes I swear she's giving me the evil eye <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/lol.gif" style="border:0px solid;" title="lol"><br><br><br><br>
We're still tube feeding. I'm not sure what's the go with that, she'd be 34 weeks this week which is when I've heard you can start them bottle or breast feeding so I might have to ask about it. She's so little though, I'm sure one of my boobs is bigger than she is. We're still waiting to break the kilo mark.</div>
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Yes I am able to put the trach back in TGG Otherwise we would be in the doctors office quite frequently.<br><br>
Normally they wait until the babies are off of the vents to start bottle feeding because the vent is keeping their airway open and they are at a much higher risk of aspiration. Now that she is on CPAP they might try and start the bottle feeding.
 

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Congrats! MAggie went back on the vent once but like your dd, she pulled it out. Saw your pics, what a cutie! Such memories it brings back!
 

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Discussion Starter · #11 ·
Thank you <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/orngbiggrin.gif" style="border:0px solid;" title="orange big grin"> We got some more good news today. She also made it to 1kg!<br><br>
Her doc decided to take her off the steroids - last time he did that she had the biggest case of roid rage. She played up so badly that she was back on it within a couple of hours of coming off.<br><br><div style="margin:20px;margin-top:5px;">
<div class="smallfont" style="margin-bottom:2px;">Quote:</div>
<table border="0" cellpadding="6" cellspacing="0" width="99%"><tr><td class="alt2" style="border:1px inset;">
<div>Originally Posted by <strong>Khourtniey</strong> <a href="/community/forum/post/8180164"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">Normally they wait until the babies are off of the vents to start bottle feeding because the vent is keeping their airway open and they are at a much higher risk of aspiration. Now that she is on CPAP they might try and start the bottle feeding.</div>
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Yeah, that makes sense.
 

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Oh this is wonderful news! So so great <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile"><br><br>
D did the same thing with his CPAP & his nasal canula. They know when they are ready to be done with it. Such fighters <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/heartbeat.gif" style="border:0px solid;" title="heartbeat">
 
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