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Discussion Starter · #1 ·
With a consultant, I mean. I keep seeing references to how expensive it is, but don't see many actual quotes. I am curious whether it's way out of range for us or whether it would be so helpful that we should start scrimping and saving ASAP.<br><br>
Sherri
 

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It probably varies from place to place, but here when I priced it, the full program with the consultant was $3000. I think that was for six months but I am not sure.
 

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What is RDI? <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/redface.gif" style="border:0px solid;" title="Embarrassment">
 

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:<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/wave.gif" style="border:0px solid;" title="wave">s at Sherri::<br><br>
V expensive. The costs for the 2 day and the 4 day training (which most consultants prefer if not require) are high, then you have the RDA which are now being done 6 monthly and then you have the cost of the consultant per 6 months. Some consultants charge more than the $3000. The training costs are on the website.<br><br>
I was looking at about AUD$9000 for the year. If a consultant starts work in my city, I might reconsider but there were going to be travel costs as well for us and that just put it out of consideration for us. We do see an OT and an ST who have done some RDI training and they are way more affordable.
 

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Oh yeah... That reminds me. It was actually more than $3000 here too. There was some kind of introductory seminar around $500, then followed by a mini-program that was $1800 before you got to the $3000 portion. It's way too expensive for us right now but I am considering buying the books with the activity suggestions. I think I read somewhere on here that there were DVDs too that you could use to get started with it at home.
 

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Well, we didn't go to any seminars. I bought the DVD used for $125 but if I had it to do over again I wouldn't have done that, especially now because it has changed so much from where it started. I started on my own for free essentially scavaging stuff off their website (which may change very soon and have access restricted to those who are with a consultant so get what you can now if you want to do that). I also signed up for yahoo groups (RDI midatlantic is the biggest one) that have tons of information and advice.<br>
And then I was lost. Could have just been me as I know there are people out there making great progress completely on their own. We got a consultant at that point. The initial cost for the first 6ish months is more than any other time period because the first assessment is more involved.<br>
For our consultant (and we looked at several and all were about this) it was $1500 for the initial three day assessment and working one on one with the consultant. That included several follow up appts. afterward (for a month long period where we were in very frequent contact). We also had to pay for travel expenses in our case because our consultant is about 16 hours away from us. After that initial time period we work with her (distance in our case, I send clips of myself with Andrew) about once every two weeks to once a month. That is billed as a therapy session at an hourly rate that is typical for therapy (like I want to say $125 but I can't find it right now and am stinky with remembering numbers). Her reviews have taken an hour each time. So the fees outside of the assessments are like the other therapy costs we have--no more and actually less because generally it isn't once a week. Then every 6 ish months (I don't think most are you must do it at exactly 6 months in nature and ours isn't) we will have a follow up assessment. It is shorter and less cost though not a ton less--maybe $1200. The assessments are the expensive part. However, in both cases (we actually worked with another consultant prior to our current one though we weren't happy with her) the consultants spent I'd say well over 10 hours just meeting with us and Andrew. The prep work they did outside of that I am sure took a ton of time. They were reviewing tapes and coming up with plans and as I said we had follow up in addition to the initial evaluation. I got very detailed reports and plans. I guess I am saying that for a professional person the hourly rate for those assessments is probably low compared to normal therapy rates. But it is a lot of therapy time in a short period (generally 3 total days I think). The thing that bugs me most is they are coming out with an updated system right now which is going to be neat and helpful I really think it will be--but it may require that you pay a fee to participate and that just irks me a bit. On the other hand, I've decided this is the way to go for my son so it is a save and scrimp thing for us.<br>
Now in Indiana insurance is required to pay for treatment related to an autism diagnosis. I got my son a label for that reason and now insurance is going to cover this for us at least 60% because our consultant is out of network, more if we pushed it which I don't think I'm going to. I didn't know that when I started and we paid for all the initial things with both therapists on our own. I guess I am saying I still would have done it.<br>
I hope that helps some. It is expensive. On the other hand, I think most therapies are. ABA in my understanding costs way, way more. Perhaps that is paid for for some people...I'm not sure how that works.<br>
Another option is if you can find a consultant in training they will often work at a reduced rate and sometimes are even looking for families to use for their training at no cost. My experience, though, with a consultant in training wasn't nearly what we have now.
 

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We lucked out and found a local psychologist who specializes in ASD and is currently getting certified as a RDI consultant. Insurance is totally covering it with a co-pay of $15. I also joined the yahoo group, thanks to Rachelle's suggestion and am getting a general sense of it from that. I'm also going to ask that listserv if anyone wants to sell me the DVD used (Rachelle?<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/innocent.gif" style="border:0px solid;" title="shy"> ) Otherwise, I think the psychologist might have a copy to lend out.
 

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I'm actually pretty disgusted at how all the good information is going to disappear from the site and how he is totally rejigging the whole program and it is becoming more inaccessible.<br><br>
I'm one of the people who watched the DVD, read the books and went from there. I know that if I used a consultant, that we probably would be making different progress but it's still better than doing nothing.<br><br>
I think the comparision to an ABA program is invalid. ABA costs so much because you are paying for a therapist or several to work with your child 30 to 40 hours a week. RDI is different in that the parent/caregiver delivers the program. Not all consultants bill like sbgrace's -- some want the thousands of dollars upfront so that parents don't 'drop out' of the program.<br><br>
FWIW the books are now considered as old info and not relevant to RDI as it is presently going to be delivered.
 

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<div style="font-style:italic;">I'm actually pretty disgusted at how all the good information is going to disappear from the site and how he is totally rejigging the whole program and it is becoming more inaccessible.<br><br>
FWIW the books are now considered as old info and not relevant to RDI as it is presently going to be delivered.</div>
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What is this about? I didn't know this! That's really awful to do to all the folks who choked out a ridiculous amount of money. You know, I really feel frustrated too with the fact that these therapists come up with what they say is ground-breaking interventions to help kids on the spectrum, but then they make the price so high that only those with privelege can benefit. It's really offensive. I read on the recoveringfromautism listserv about a doctor who said families should fundraise to make his services available to those who couldn't afford them! How about a little probono work instead?
 

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It's going to be OK for those who use a consultant -- the consultant will do the RDA and then move on to the new system with the family.<br><br>
The chats and the archives are going to be inaccessible (or they were going to be, maybe that has changed? I haven't been following it closely.).<br><br>
I don't have a problem with doctors making money but I think a little pro bono work is a Good Thing.
 

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Kerry, let me see if I can find my DVD (I don't think I already sold it but I'm not positive on that which I know seems <img alt="" class="inlineimg" src="/img/vbsmilies/smilies/dizzy.gif" style="border:0px solid;" title="Dizzy">: I sold a bunch of stuff this summer; and right now my house is way disorganized). I only watched it a couple of times--it does give you an over-view but things are changing so much now...the clips of kids are good to see anyway.<br><br>
I'm really unclear on how they are changing access. I know that they are having really detailed objectives now and it is supposed to be more user friendly for parents--which is a good thing imo as I didn't find it to be so when I started--but so far that is only being released to consultants. In fact, it may be tomorrow they are doing that release. Also, my understanding is the tapes I send to my consultant can be entered into a database somehow and that may be where the fee comes in. I don't know much about it and I don't think consultants know for sure either. I'm going to wait to see what that entails though before I get too irked. I also am bugged that therapy for autism in general (not just RDI) is out of reach for many people. I wish all States (and over-seas) had laws that insurance had to cover PDD and other special needs. Or something should be done anyway.<br><br>
We aren't well off. I don't work anymore and hubby works for the State of Indiana. I put his salary here and then edited it cause he would freak. We're middle class. Just as bad for us in terms of all this is the extras in addition to therapy--diet, supplements, therapy recommended items. If it weren't for my discovery on our insurance we would be doing RDI no matter what but probably not OT for example, which he really does need.<br><br>
I know some consultants are unhappy about the fee for access too. I really do feel, though, that the charges for the consultant services are fair. In most cases these are people who have Master's degrees in their field (speech, occupational, psychologist) and then the RDI training on top of that. Most also have training in other autism interventions prior to starting RDI (i.e. ABA, floor time, etc.). My consultant told me she used to do free consulting but it did not work well. She said people who weren't paying didn't put into it what those who were and I can see that. My present consultant works very hard and long hours. She replies to my questions and clips within a day generally--including week-ends. People have a right to make money. And I think most people in the field of autism as far as therapists go see it as a calling. They are in it for the kids. It is just wrong that special needs therapies (not just autism) aren't treated like they are medical necessities.
 

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I don't have a problem with people making a living from working with kids with autism. I do think that RDI is overpriced (it's particularly overpriced for the Australian market) and most of the hcps I work with who are familiar with it are amazed at how much is being charged. I've heard that speech about how people who pay less for RDI/don't pay upfront for therapy are less dedicated than those who do. I'm not sure what I think about that. I certainly don't value the psych sessions which are paid for by the govt any less than those I pay for out of pocket <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/wink1.gif" style="border:0px solid;" title="wink1">.<br><br>
ITA that therapies should be more accessible for people without bottomless wallets. I also think RDI has a lot going for it but I am dismayed that it seems to be getting less accessible rather than more accessible.
 

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The book is about $30, "Relationship Devleopment Intervention for Young Children:Social and Emotional Development Activities for Asperger Syndrome, Autism, PDD and NLD" author Steve Gutstein of course. I have found it to be fairly self-explanatory and it seems to be helping my 7 year old quite a bit.
 

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Discussion Starter · #15 ·
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<div style="font-style:italic;">The book is about $30, "Relationship Devleopment Intervention for Young Children:Social and Emotional Development Activities for Asperger Syndrome, Autism, PDD and NLD" author Steve Gutstein of course. I have found it to be fairly self-explanatory and it seems to be helping my 7 year old quite a bit.</div>
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That was how I was hoping it would be for me. In reality, I am finding the very first things extremely difficult to apply. It is common for him to scream "Why are you talking like that?!" when I change the way I speak. I feel uncertain about adding "stutters" since he stutters, and it could seem like I was mocking him. The book describes how some kids are oppositional enough to need a behavioral modification program before beginning, and DS may just be that oppositional. When he's really "elsewhere", although he's high functioning in many ways, he doesn't respond to either talking or attempts to make eye contact (he will move his head pretty far to avoid it and will scream or hit you if you touch him to get his attention--he doesn't do this all the time by any means, but it's a distinct possibility).<br><br>
So I'm sometimes at a loss as to how to make this fun <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/redface.gif" style="border:0px solid;" title="Embarrassment"><br>
And hello there, Anna V!<br><br>
Sherri
 

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Sherri,<br>
I also got the book and then felt lost in using it with my son. You wrote:<br>
"The book describes how some kids are oppositional enough to need a behavioral modification program before beginning, and DS may just be that oppositional. When he's really "elsewhere", although he's high functioning in many ways, he doesn't respond to either talking or attempts to make eye contact". I posted something really similar on the RDI midatlantic yahoo group when I was trying to start out. I also contacted a few consultants about the first concern--that my son was one of those Gutstein was mentioning who needed something else first. I was told that Dr. Gutstein now says that RDI is for every child. Those children who were oppositional at first needed a preceeding step or two--regulation and guided participation (most consultants seem to work on this at the same time--doing regulating activities together where he has a role and you have a role--an example for us early on was I took the laundry out of the dryer and handed it to him and he put it in the basket and at first it was 3 pieces and end it positive; my son was only 2.5 so I don't know what they would do with an older child). Those terms (guided participation, regulation) are used on the website and also some older ones (pre-apprentice, master apprentice) and none of that is covered in the book so you might want to take a look at the website and yahoo groups too. The book was the very start of RDI and Gutstein has said the he missed some stages/important pieces the first time around due to limited participants. He evolves it as they learn new things and I like that. My son doesn't respond to the typical things that are mentioned (pausing, even throat clearing and that sort of thing) so that was another reason I felt lost. The stuff mentioned just didn't work for him. Our consultant is helping us get the bottom of the why and how to approach my guy.<br><br>
So I'm sometimes at a loss as to how to make this fun. I also identify with that. At first though (the guided participation regulation parts) it is more about the child feeling competent with his part in the interaction and building confidence than it is fun.<br><br>
I don't know exactly what to tell you because my son is probably much younger (3) but my guess based on what you wrote is you need to work on those earlier stages before you are ready for the book suggestions.<br>
It was at your point I did get a consultant and it was worth it but if you decide to go that route get recommendations from other parents for someone good and/or pick those with lots of experience.
 

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Discussion Starter · #17 ·
Thanks for your response--it was very helpful. I'm still a bit uncertain as to what I'll do with it, but I've reread it a few times. It gives me a lot to think about.<br><br>
Where on the site are the forums and the articles I would want to download before they are restricted? I have an extremely hard time navigating that site. I've found things before that I can't find again. Perhaps they are going the "we won't restrict it, but we'll make it really hard to find anything except conference dates and what to purchase!<br><br>
Sherri
 

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Discussion Starter · #18 ·
Okay, I found the Member Services stuff this time. I was unable to download a number of things and got a "file not found" message. The introductory booklet was one of them. If anyone can share it with me, that would be great.<br><br>
Sherri
 
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