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Discussion Starter · #1 ·
My daughter has alot of blood in her urine, not visable thank god, microscopic..she's had trace amounts in her urine since she was 4 months old, maybe earlier..but the docs nor I thought much about it. She had a high fever last week, and she had a urinalysis done, NO infection at all, BUT alot of blood. I was hoping it was a fluke so I had her pee in the potty, and i brought that in thismorning to be tested, and it still has blood.<br><br>
She has to see a nephrologist, her appt isn't until oct 25th<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/irked.gif" style="border:0px solid;" title="irked">: but they are trying to get her worked in sooner.<br><br>
I'm so scared. This whole time I thought her pain was due to acid reflux, and in reality it could be a whole new ball game<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad"><br><br>
her ped thinks her kidneys aren't working right.<br><br>
has anyone experienced this? anyone know of causes that aren't serious. DD was a preemi, she had IUGR..I don't know if that has anything to do with this.<br><br>
Thanks for ANY advice!!!
 

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I don't know, mama. But I had to give you a <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug"> because that does not sound fun. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad">
 

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<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug"><img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug"><img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug">
 

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<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug"> If part of the fear is waiting, then push mama-bear style to get that appointment sooner. You shouldn't have to wonder about "blood in urine" for almost two months. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug">
 

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Discussion Starter · #5 ·
yes, the waiting sucks!! I must have called 10x today..finally we had Kailey's ped fax over her chart, test results, etc.. and the nephrologist is supposed to call me tomorrow to see what he can do about bumping up her appt. I hope hope hope they can get her in soon. DH wants to go "camp out" at his office right around closing time, that way the doc will "have" to see her.. the only way I know of to get her to be seen by a nephrologist asap is to go to the childrens hosp ER...but she's not "sick" ugghh... I think it's pretty f ing ridiculous that the wait is this long, and a sad reality that there are so many children with kidney problems.<br><br>
thanks for all the hugs and kind words everyone
 

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I'm sorry to hear that. My kidneys are fine but I've had issues with my bladder as a child and then again as an adult and it's awful. I hope you can get seen really soon!
 

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yeah, keep calling to push for a sooner appoitnment. check for cancelations every morning. i've had lots of specialist visits moved up that way. good luck!
 

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<div style="margin:20px;margin-top:5px;">
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<table border="0" cellpadding="6" cellspacing="0" width="99%"><tr><td class="alt2" style="border:1px inset;">has anyone experienced this? anyone know of causes that aren't serious.</td>
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I can testify that not all causes of blood in urine are serious. DD has tested with trace microscopic blood in urine before due to what we think was kidney irritation due to her diet, and I myself get macroscopic blood in urine now and then, sometimes very visibly. In my case it is due to IgA nephropathy, which is a kidney disease that ranges from mild to serious but in my case is very mild and easily controlled...just comes with blood and protein in urine and has no other impact on my life. I hope you are able to get a sooner appointment and that it turns out to be something not serious for your DD as well. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug">
 

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i'm sorry mama... <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug"> i have no advice. just wanted to say that we are also headed down this path. my dd (35mo) has also had small amounts of blood in her urine in two seperate tests so far, and we are doing a 3rd test tomorrow to confirm yet again before we send her off to paediatric urologist. she also had an fever of 104F for two days straight about 3 weeks ago. actually, that's what sparked the two urine tests. no bacteria was present at all, just blood and high ketones.<br><br>
when i quizzed my doc on what could cause blood to show in a urine sample, he said either it's most likely either infection, polyps or kidney problems. i've stuck with that response for now, and haven't really looked anything up yet as there is only so much i can handle at this moment (we have other issues going on with dd that are unrelated to this).
 

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Discussion Starter · #10 ·
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<div>Originally Posted by <strong>mamamelia</strong> <a href="/community/forum/post/9029975"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">i'm sorry mama... <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug"> i have no advice. just wanted to say that we are also headed down this path. my dd (35mo) has also had small amounts of blood in her urine in two seperate tests so far, and we are doing a 3rd test tomorrow to confirm yet again before we send her off to paediatric urologist. she also had an fever of 104F for two days straight about 3 weeks ago. actually, that's what sparked the two urine tests. no bacteria was present at all, just blood and high ketones.<br><br>
when i quizzed my doc on what could cause blood to show in a urine sample, he said either it's most likely either infection, polyps or kidney problems. i've stuck with that response for now, and haven't really looked anything up yet as there is only so much i can handle at this moment (we have other issues going on with dd that are unrelated to this).</div>
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I'm so sorry that we're in the same boat <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad"> Huge hugs!!
 

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<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug"> Mama.<br><br>
My daughter has a Neurogenic Bladder, so I know the stress you are under. Especially the not knowing what you are dealing with stress. I think that was the hardest part.<br><br>
Has your child seen a Urologist? Could it be from the bladder and not the kidneys?
 

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Ask your ped if he can order some preliminary testing, like a kidney ultrasound and a 24 hour urine collection.<br><br>
Even if you can't get into the nephrologist right away you can still have the testing underway so they nephrologist has more to work with once your appointment comes around.<br><br><img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug">:
 

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Discussion Starter · #13 ·
sept 13th, that's better than october 25th!! in the meantime the nephrologist wants me to get ahold of every single urine test she has had, that won't be hard.. and bring in her us films.. he may order tests before her appt she's ALWAYS had a trace amt of blood in her urine, I really feel like a idiot.. we always just assumed the blood was from cathing her. Now it's too much blood to ignore. He told me if she spikes a fever or starts acting sick, take her to all childrens and explain she needs to see nephrology. ugghh... anyway I'm glad that they upped the appt
 

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I had nephritis as a child--it came from strep throat and went on longer because my father was supposed to bring in the post-strep urine sample, but didn't and didn't mention that he hadn't. So the blood in my urine was picked up at a checkup some months later, I think. I don't know how much there was, but the nurse asked my mother if I was having my period, which alarmed her since I was 8 (not that that's unheard of these days).<br><br>
I was out of a school for awhile (about 2 months, I think) and on a kind of bedrest. A friend in school had also had post-strep nephritis and had needed surgery of some sort. Neither of us had anything dramatic or any lasting problems from it. It's not considered relevant to my current health in any way.<br><br>
Sherri
 

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Discussion Starter · #17 ·
<div style="margin:20px;margin-top:5px;">
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<div>Originally Posted by <strong>mamaverdi</strong> <a href="/community/forum/post/9039102"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">So this is blood under a microscope or blood on the dipstick (macroscopic)? Urine analysis is done several different ways.</div>
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both
 

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<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug"> Been following your story here and at the other place. How are you holding up? Have you managed to get her appt. bumped up?
 

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They need to look for myoglobin as well. Is there a disparity b/w the blood macro and the blood micro?<br><br>
I hope your appointment comes soon.
 

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woohoo for sept 13!!!!! that's just around the corner.. that's my dd's birthday too btw. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile"><br><br>
thanks for the hugs - you are so sweet! <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/love.gif" style="border:0px solid;" title="love"> tomorrow we're doing the 3rd urine sample for dd and results should be in on monday. fingers crossed, but my gut tells me it's still going to be the same result.<br>
thinking of you mama... keep us updated in the mean time.<br><br>
mamaverdi - can you please elaborate on "They need to look for myoglobin as well. Is there a disparity b/w the blood macro and the blood micro?"<br>
if there is a disparity between the results, what exactly does that mean in terms of diagnosis/outcome?
 
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