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Discussion Starter #1
I didn't want to sidetrack the other thread, but I would really like some opinions. I'm just going to C&P my post because my kids won't let me type up a whole new post. My 3yo dd is on the spectrum (high functioning) and has significant sensory issues. I've been wondering alot about my ds who just turned 1 a week ago. He doesn't point yet, he doesn't wave and is kinda quiet. I had my dd's EI therapist do a quick eval of him last week and she said he was "within normal limits, just a little behind" and told me not to worry. I am just wondering what other mamas would do at this point. All the warning lists for autism say that they should be waving or pointing <i><span style="text-decoration:underline;">by</span></i> 12 months and he does neither. Something doesn't seem quite right in how he interacts and communicates (or lack there of) but everyone is telling me not to worry until he's older. I'd really like some opinions. I wonder if I really even know what to expect of him and if I'm just being paranoid.<br><br>
TIA!<br><br>
~Rebecca
 

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As an at-risk sibling, he ought to qualify for EI regional center services even without any red flags. At least, here he would. with those concerns, if it were me, I'd be referring him today. "a little behind" is not something to pooh-pooh when developmental delays run in the family, especially not in brothers.<br><br>
I'm not saying there's any way to tell what his diagnosis/situation is at this point, only that a little extra help won't hurt, you know? So don't jump to conclusions, but why not get some extra eyes on him and some play therapy?<br><br>
(edit to add: I refered my younger two to EI just recently. One for being "a little behind", the other is probably fine but qualifies as a little sib anyway)
 

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My opinion is I had a son who wasn't doing either at a year either. I was told not to worry. He did point some time around 15 months or so with some work from me. He still points appropriately but never really took to waving without prompting (or shaking his head yes/no etc). He is PDD-NOS without a doubt.<br><br>
I wish I had started intervention (something like floor time) at that 12 month mark. I would if I could go back. So in your situation I would treat him as at risk and as if. If it turns out that he is just delayed and not spectrum (possible of course) you haven't lost a thing. If however these are first signs you've lost time. I come at autism from a making weaknesses stronger through appropriate intervention (personally I like floor time and RDI and similar approaches and helping with sensory issues, etc.) so that colors my opinion of course.
 

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Discussion Starter #4
So should I talk to my dd's EI caseworker about scheduling a full evaluation for him? She actually mentioned that I should keep her info in case anything came up with Alex after dd is out of birth to 3 services (which is next month). I don't think he qualifies for services here just for being at risk. Like I said, I had her EI in home therapist do a screen on him and she said he was "fine". She said he was at an 8 month level for social but that was because his communication was a little behind, and that she wasn't concerned yet. Our ped didn't even think my 3yo dd needed to be seen by EI in the first place, but now we've had a year of 3x week therapies, referrals to an university program for autism, etc. So I don't really trust my ped's opinion all that much, she's mostly just there to sign off on well child checkups.<br><br>
I guess I'm not sure who I should be calling? I don't quite get how if he tests as 8 months on social, how he can be doing "close to normal". I guess I need to start practicing being a squeaky wheel again, because if I hadn't pushed for further evals with my dd she never would have had any services. I must admit I'm also coming from a place where I'm getting ready to end most of my dd's services as she turns 3, so the idea of jumping back into all of it sounds awful. I was really looking forward to some normalcy, or at least close to it, kwim?? <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad">
 

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Discussion Starter #5
sbgrace- I actually appreciate your perspective, because it is so similar to my own and NOT what I hear from all the professionals we see for our dd.
 

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It all depends on if you want services... if you want services there's no harm in getting an eval. I think ANY maternal worry should be taken seriously... mother's instinct is powerful.
 

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Discussion Starter #7
<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/innocent.gif" style="border:0px solid;" title="shy"> bumping for further responses
 

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I think if you have one on the spectrum and another showing some possible delays it makes extra sense to get an eval. Like the PP says, this puts him at a somewhat higher risk than someone with no family history. Oh, and I'd go to a developmental ped rather than EI. In general I've seen too much incompetence with EI - that's just my experience though.
 

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<div>Originally Posted by <strong>kchoffmann</strong> <a href="/community/forum/post/7952378"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">I think if you have one on the spectrum and another showing some possible delays it makes extra sense to get an eval. Like the PP says, this puts him at a somewhat higher risk than someone with no family history. Oh, and I'd go to a developmental ped rather than EI. In general I've seen too much incompetence with EI - that's just my experience though.</div>
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I agree with all that. Good luck!
 
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