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Discussion Starter · #1 ·
Many of you probably remember our ongoing speech issues with ds, now 3yo. Things have gotten dramatically better the last 6 months, but it is still making me crazy.<br><br>
One day I feel totally fine about his progress and the future. The next day I am freaked out and don't know what to do.<br><br>
We had yet ANOTHER speech evaluation. Like everyone else, she found no problem, but thought he should be in speech therapy. Okay, here's the problem with that: Of the four we've seen, two I hated. The third one I liked, but she is going on maternity leave and not seeing new clients until next January. The fourth I liked, and we spent a few months seeing, but her approach is just not working with ds. He likes her and will engage with her, but I can just tell it's not the right person/approach for him. The child development specialist we saw doesn't think there is a thing wrong with him at all. In fact, she thinks he's gifted, and thought he was just the most charming child she had seen in a long time (and she's run a highly respected preschool for over 20 years).<br><br>
I've contacted our local EI dept. They sent out the paperwork for me to fill out. Then they will contact us within 50 days. So at least two months before we even get an assessment. I talked to the director of a non-profit speech center here, and she said that based on the evaluations we've gotten so far, she doesn't think he will even qualify for EI, based on his high functioning in all other areas. Oh, and the non-profit program is booked until at least September. We have been on the waiting list for the 'renowned' child development center in our area since October. We've had the hearing test done.<br><br>
And none of this has been covered by our insurance. Not one penny.<br><br>
Like I said, one day I'm convinced that he's fine. The next I freak. We've narrowed down the problem to issues of pronunciation. So of course the term 'mild apraxia' has been tossed around, but to be honest, he really only meets the most vague of symptoms for apraxia. His mispronunciations are consistent - it's not like he can say a word one day but not the next. He can say "ow", like when he gets hurt, or "meow" for a cat, but when he says "down" it sounds like "don't." But it's consistent. He can say "ride the choo choo with daddy at the zoo," but he can't say "gramma." He can say "No, don't do that", but he can't say "cat." He can say "yes" and "snow," but then "stop" is "bop." The times I really freak are when we're reading or something, and we see for instance a giraffe, and I'll say "Can you say giraffe?" And he'll come out with "gaba", or something equally unintelligable and not even close. But then the next minute he'll perfectly mimic dh saying "yeah baby" while watching a baseball game.<br><br>
I'm just feeling so stressed about this. I feel so frustrated that not only can I not seem to get any help for him, I can't even decide if he actually needs help.<br><br>
And to make me feel even worse, I told my dad today that we were considering preschool for him in the fall, and he said "one for kids with problems?" And I said no, a regular preschool. And he said "well, he has a problem." And he said this right in front of ds too. It just broke my heart.
 

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Well, I think that was rude of your dad to say that, especially in front of ds.<br><br>
No advice. But I think of you and your ds often because my dd is in the phase where she carries on a conversation and looks at us like we should know what she is talking about. She does say some short sentences and lots of individual words though. And she is quite a bit younger, 19 months.<br><br>
((()))s to you. Hope you get some advice. I guess I would just wait until something opens up. Sorry. Kind of lame.
 

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Do you live near a college? We took our DD to the college- the students learning speech pathology need experience and pupils to learn with. They are all grad students who have completed most the book learning and are well supervised. It was a great experience- we had young very involved and very dedicated people- They were so sincere and it was the first time my DD reached out beyond the family. She started at 2 and I just quit at almost 3. They still reccomend speech, but I'm just glad she talks now. LOL. She's only began in the last couple months. I'm not worried about her being "behind" just worried about it if it frustrates her and it no longer does so we stopped. But we had the best experience with the grad students and it was way cheaper. 10.00 a visit. 2.00 after our deductable was met.
 

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<div>Originally Posted by <strong>oceanbaby</strong></div>
<div style="font-style:italic;">His mispronunciations are consistent - it's not like he can say a word one day but not the next. He can say "ow", like when he gets hurt, or "meow" for a cat, but when he says "down" it sounds like "don't." But it's consistent.<br>
And to make me feel even worse, I told my dad today that we were considering preschool for him in the fall, and he said "one for kids with problems?" And I said no, a regular preschool. And he said "well, he has a problem." And he said this right in front of ds too. It just broke my heart.</div>
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Hi! If i can help, please pm me! I'm a speech-path in NY (i don't know where you are, so i don't know the specifics of your local programs). If i can give you any info, or just be a more specifically educated ear to bend, i'd be glad to! (i often feel like such a newbie here, when i can feel confident about a post, i'm all for it!)<br><br>
I quoted the 2 things above specifically. Consistent errors are not a sign of apraxia. Apraxia gets OVERUSED insanely. Consistent errors are more often a sign of a phonological disorder- a disorder of the sound SYSTEM. In other words, he's got his own set of rules for sounds. (this is NOT a diagnosis...<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile">)<br><br>
Your dear, sweet, loving dad <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/irked.gif" style="border:0px solid;" title="irked"> can piss off IMO (sorry, can i say that? <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/whistling.gif" style="border:0px solid;" title="whistle">) ask him where he got his master's in speech next time (sorry, bitchy but argh)<br><br>
IF your ds is already 3, early intervention will not apply. EI is for birth to 3, then the school districts take over (at least IME!). A preschool program would be great for him! Not a special one, obviously, but a regular one. If he needs speech, he can get it there, most likely. It's often easier for the school district to provide services at a site than find someone to go to the house.<br><br>
The advice about a college campus is great <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/thumbsup.gif" style="border:0px solid;" title="thumbsup"> If, of course, you live near one. If you let me know what you live near (if anything) i can let you know if they have a speech dept.<br><br>
I'm sorry for your frustration. My 14 month old gets PT and i'm so tired of either defending my decision to have her evaluated & treated, OR, fending off dopey comments comparing her to others.<br><br>
Seriously, any help i can offer, i'm glad to!
 

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Discussion Starter · #5 ·
Thanks so much everyone for your replies. I really can't tell you how much it helps to get input/stories/ideas from other parents.<br><br>
Monica - I will definitely PM you. Thank you for your offer to help.<br><br>
And my dad, well, I don't know what to say about him. He adores ds, and it's mutual, but I don't think he realizes how sensitive I am to having ds hear that he 'has a problem,' especially from someone that ds idolizes so much. Plus, I have already seen ds get sensitive about his speech issues, like when an adult hands him something and then says "Aren't you going to say thank you?" Grrr, that drives me crazy. I can see ds get really embarassed - he will kind of hang his head, and there have been times that he has even tried to hand the item back.
 
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