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Discussion Starter · #1 ·
I'm looking for natural recommendations for reducing the inflammation process going on in my body related to lupus. The things I do naturally to help prevent my body are higlighted in bold in my story.

I've been diagnosed with lupus for almost 6 1/2 years now. Starting the fall of my freshman year of college (I think), I started to feel excessively tired, achy, and started losing weight from my healthy 130 pound frame. My Kaiser PCP in Oregon diagnosed me as depressed that fall and put me on an SSRI. I sort of swallowed the diagnose and took the pills. I knew SOMETHING was wrong and also knew many people with depression have denial


Sophomore year I got thinner and thinner. I was swimming (poorly) on the college team and sleeping instead of going out with friends. My grades were also in the toilet 'cause I was sleeping upwards of 16 hours a day. I went to the doctor three or four times for "check-ups" and to monitor my weight loss. At 103 pounds sophomore year, I was diagnosed as anorexic as well. It shocked me. I loved to eat and would whenever I had the energy to walk to the dining hall from my dorm. He did some bloodwork and found I was anemic. His diagnose was a nutritional deficiency and he sent me to a nutritionist and eating-disorder specialist the summer of my sophomore year. I thought I was losing my mind.

It almost killed me the fall of my junior year. I went to see a new doctor in St. Paul for a rash on my face. He immediately sent me to the dermatologist and drew blood. I saw the dermatologist that afternoon and they biopsied the rash on my face. The next day my roommate found me unconscious in my room in our apartment.

I spent 1 1/2 weeks in the ICU intubated and sedated with severe renal failure that had led to other organ system failure. My family was called and they all flew out to be with me as my body shut down. After 8 days on steroids, my kidney inflammation started decreasing. My liver enzymes started trending towards normal. I was making a little bit of urine. My hospital stay was a total of 16 days, but I was on oral steroids for almost 18 months after that.

My admit weight in the hospital was 93 pounds and my weight at the end of steroid therapy was 225 pounds. My kidney function, however, was essentially normal though and I was feeling much better.

I took a maintenance immunosuppressant for 4 years after that and stopped taking it the moment I found out I was pregnant. I haven't gone back on it yet and have controlled the few flare-ups I've had with steroids immediately. I'm on a homeopathic inflammation diet, stay far out of the sun, use Yin care topical gunk, and also take two herbal remedies that make my pee smell like reefer.


I sorta feel like I'm living a normal and definitely happy life
 

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Omega 3 oils are anti-inflammatory. I would recommend a high quality cod liver oil with naturally occuring vitamins A & D (we use Kirkman Lab's). The A and D would probably be very good for you as well. Bowel tolerance levels of vitamin C might also do well. Also, do you supplement with magnesium? You may also benefit from that - Natural Calm is a really good brand. Do you avoid omega 6 oils? (Vegetable oils, soy, peanuts ... ) Omega 6 oils are infammatory in nature. Do you avoid wheat (and/or gluten)? (You said you were on a homeopathic inflammation diet but I'm not sure what that is and what you do/don't eat.
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Discussion Starter · #6 ·
I steer clear of Omega 6, but do occasionally indulge. I'm not completely wheat free, but make sure to eat only small amounts and always whole grain.

My magnesium levels are also on the high side whenever I've had them tested. The ND I see has me on a supplement, but is against Vitamin C. She says the anti-inflammatory properties it has does not outweigh the immune-boosting properties that can then cause inflammation. People with lupus don't want to boos their immune system to make it more active because it has a hard time differentiating what it should be attacking.

My diet is pretty close to these ones even though the sites are kinda mainstream. This is close to the handout my ND gave me.
Site 1 and Site 2

In know way am I perfect following these diets, as I believe I have to enjoy my life. I'm just really mindful when I do have something off my list of preferred foods.

Have you guys heard of this immune system theory? I don't heavily avoid Vit C, but have never given myself giant doses. My ND seems to think I should balance it with one of the powerful antiinflammatory foods when I do eat citrus.

I'm also looking for any ideas that people might have for using aromatherapy or body movement for reducing inflammation.

Oh and my inflammation is concentrated in my kidneys and skin at this time.

I so appreciate all your help and keep the recs coming
 

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My only suggestion is already provided - fish oils for Omega 3.

Have you tried acupuncture? It really helped my "left-over" pain from lupus (that the plaquenil didn't take care of).

You've had quite a journey with lupus. I wish you the best trying to find a natural way to deal with inflammation. I will be keeping an eye on this thread.
 

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Discussion Starter · #8 ·
I do maintenance accupuncture twice a month now, but I actually haven't hadd too much pain since the initial flare-up. *Occasionally* my joints ache a bit, but never bad enough for me to take anything for it.

Did your insurance (if you have it) cover the accupuncture? Mine will cover up to $500 of it, but I've already gone through my whole year allowance.
 

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I've paid for acupuncture out of pocket, $55-60 a week, for a little over a year. DH started to say something about it, but I pointed out that most of our female friends spend up to that amount ($240) a month on hair, nails, facials, shoes...and I don't even buy shampoo.
 

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My chiropracter recommended papaya enzymes to reduce inflammation when
i messed up my back they helped tremendously.
you have to take them either 20 minutes before or two hours after eating so that your body won't use them for digestion.
 
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