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Discussion Starter · #1 ·
My youngest child, Eliana, turned 2 in January. She has always been a horrible sleeper. People have always tried to tell me its normal but its not. Even my MIL is now saying I need to get her help because I am so run down I am sick constantly. She goes to bed around 7:30-8:00pm and then gets up multiple times through the night. She very, very often will wake up and stay up for hours in the middle of the night. She is not crying and distressed, she is just not tired. I will give an example of a typical night. Last night she was in bed at 7:45pm. She slept straight through until 11:15pm and then got up. I laid in her bed and nursed her until 11:49pm (she was thrashing and moving around the whole time but finally settled) and then she slept until 12:11am. I tried to nurse her back to sleep but she was up like a pop-tart. So she was up from 12:11am to about 3:00am. She was out in the living room playing and watching tv (she shares a room with her sister so we can't leave her there). At 3:00am I got her back to sleep but she never really settled, she kept going back and forth from breast to breast and every time I tried to leave her bed she sat up and starting chattering away to me. At 6:30am I gave up and let her get up for the day. The crazy part is she is not tired. She is completely happy and running around with tons of energy. I, on the other hand, am so sleep deprived that sometimes I seriously consider just walking out of the house and leaving and finding a motel where I can sleep for 3 days straight. I can't begin to explain how exhausted I am and how much it is affecting my life. I am averaging about 3 hours of sleep a night and it has been that way for most of her life. I don't have a family doctor (we are in Ontario and there are no doctors available in our area) so I would have to take her to a walk-in clinic if I were to take her in. Wouldn't they just tell me to go home and let her CIO? I'm not going to do that. Would they just think it was normal child waking? She is my 3rd child, I know its not normal. Olivia didn't sleep through the night until around 2.5 years old but she would just wake, nurse and go straight back to sleep. There has just got to be something someone can do! I am so tired and it can't be good for her either. She only naps around 1 1/4 hours a day so adding that to the nighttime sleep there is no way she is getting enough.<br><br>
Oh I have tried - melatonin, calms forte, chamomile, gravol and benadryl. Nothing works.
 

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Have you considered a mild sleeping medication? We used one for our son, and it made such a huge difference in his life and ours.
 

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Discussion Starter · #3 ·
At this point I would love a sleeping medication but I would have to get a doctor to prescribe one and I don't know if they would.
 

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This may not work for you but, could you try to push her bedtime back an hour or two, or even as late as 11:30, that might make her tired enough to last a few solid hours asleep in the middle of the night. My kids generally go to bed between 11pm and midnight because I like to sleep later in the morning and this has always worked for us. Have you tried hylands calms forte? It did help when my now 4.5yo was younger, he is by far the night owl of my kids and will frequently stay up until 2 or 3 am, this helps him to get down earlier and it is gentle.<br>
I hope that you find something that works for all of you<br>
Take care<br>
Laura
 

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Your daughter sounds exactly like my son at that age. Exactly. And I remember what a sleep-deprived nightmare it was. We tried everything, including medication.<br><br>
The thing that finally worked was getting him into OT. Within a week of starting the brushing protocol, he was sleeping through the night. We were absolutely shocked--it didn't seem real or possible, but there you have it. I worship that little brush!
 

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My first would do this, to a degree. He would go to sleep and around 1 am, wake for hours. Most of the time he just stayed in his room and talked to himself. Nothing I did would get him to go back to sleep.. he would wake for the day at 6 am..and be full of energy.<br><br>
I got a sound machine for my room to help drown out the little noises, but not the "i need you" noises.<br><br>
It turns out that my son has signifigant SPD and started getting OT at age 3 (we also used a brushing protocol) along with a weighted blanket, made a big difference for him!
 

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Can you ask for a sleep study? My experience is that sometimes doctors won't believe there is a problem until they have data that "proves" there is.<br><br>
Of course, she may have the best sleep night of her life at the sleep study. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/shake.gif" style="border:0px solid;" title="shake"> But unlikely.<br><br>
I wouldn't go with sleep medicine until I had ruled out other underlying causes of sleep disturbance. But YMMV.
 

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I agree that brushing might help. Also my sister and I just made a weighted blanket for my son and his has helped a lot with his sleep.
 

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My DD was just like that, and I thought I would lose my mind. What helped her was to have OT twice a week instead of once and with two different OT's that have different styles, so she gets one day of more sensory (swings, fingerpainting, walking on beans, play dough) and the other day is way more physical. This is at a center, the OT we had coming to the house I really think made things worse for DD <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/irked.gif" style="border:0px solid;" title="irked">:<br><br>
We also don't have her go to sleep until at least 10PM, or else she is up at 3 or 4 am. Most nights if she is asleep around 10 or10:30 she will sleep until 6 or 6:30 which is better than it was just a few months ago.<br><br>
I hope you can find something that works because not having sleep is awful. I really feel for you.
 

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I second the sleep study.<br><br>
Is there any way to see if she qualifies for OT, since so many people here have found that helpful?<br><br>
AND at the risk of being flamed/banned from MDC, I would encourage you to rent a hotel room for a night once a month. It's a good fantasy! If you can't afford that, go to a friend's house. SOMETHING so that you can get sleep.<br><br>
You might seriously consider night weaning her as well. She's not really nursing back to sleep, is she? At over 2, she can survive a night without nursing, whether that's a single night or altogether. And if she's not night nursing, someone else can be responsible for her some nights (i.e. your dh can take over some of the time).<br><br>
My cousins, who have a son with autism who also did not sleep, did that. They would alternate. One month her dh got to go, one month she did. It saved their sanity (and probably their marriage!).
 

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Lynn is so right about the hotel room.<br><br>
When my son was in this phase, my husband surprised me on my birthday with a key to a hotel room five miles away. He had stocked the room with my favorite treats, a good novel, and chick flick. He brought DS to nurse once that night and then the next morning, and I slept like I hadn't slept in years. I still think that was the best present I've ever gotten from anyone, hands down.<br><br>
FWIW, my son (now 5.5) is now the best sleeper in our family. He has a ton of other issues that we're working on, but sleep is no longer one of them. I hope you get it ironed out soon.
 

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<div>Originally Posted by <strong>Heavenly</strong> <a href="/community/forum/post/10763448"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">At this point I would love a sleeping medication but I would have to get a doctor to prescribe one and I don't know if they would.</div>
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Any doctor/pediatrician can prescribe a sleep medication. I wrote this about James' sleep med in an old post:<br><br>
We used a common prescribed antihistamine for James...cyproheptadine. His doctors said it's frequently prescribed to help kids sleep through the night, and that it's been used safely without serious effects for a long time. Boy, did it work. At first he took the prescribed dose, and it made him groggy all the next day. We backed WAY off, giving him a fourth of the prescribed dose (1mg vs. 4 or 5, I think), and it worked like a charm. Rarely he'd still wake up at 3 or 4 or 5 am, but for the most part he went to sleep, stayed asleep, and woke up very clear. We wanted to err on the side of him waking up clear rather than on the side of him sleeping "perfectly" every night.<br>
----<br><br>
cyproheptadine is just an antihistamine (sp?), but one of its most common uses is as a sleep aid.<br><br>
I would try to make contact with a family doctor, tell them what's going on, and ask for help. You could suggest cyproheptadine, or do some research adn come up with another med you'd like to try. If you can't find a family doctor to help out, then I'd try a walk-in clinic. Try to develop a relationship with some of the doctors or nurses there--so even if it takes a few visits of trying to get some help, eventually you'll be "known" to them and maybe you can get the support you need. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug">
 

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i would use a sleeping medication. That is the way my son was, it was crazy the way he would sleep... or not sleep rather. Try putting her to bed later... maybe, just maybe, keeping her up would make her a little more tired?
 

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Can you see a naturopath? Alot of health insurance plans cover it.<br><br>
Also, try to find out about your town's health unit...they can refer you for OT and other help. Telehealth might be able to give you some phone numbers; or call your local Ontario Early Years Centre - they will definitely have some resources for you. <a href="http://www.ontarioearlyyears.ca/oeyc/oeyc.htm" target="_blank">http://www.ontarioearlyyears.ca/oeyc/oeyc.htm</a>
 

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<div>Originally Posted by <strong>Bookmama</strong> <a href="/community/forum/post/10766183"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">Lynn is so right about the hotel room.<br><br>
When my son was in this phase, my husband surprised me on my birthday with a key to a hotel room five miles away. He had stocked the room with my favorite treats, a good novel, and chick flick. He brought DS to nurse once that night and then the next morning, and I slept like I hadn't slept in years. I still think that was the best present I've ever gotten from anyone, hands down.</div>
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Beautiful. Your husband ROCKS.
 

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Discussion Starter · #16 ·
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<div>Originally Posted by <strong>purplepaisleymama</strong> <a href="/community/forum/post/10764368"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">This may not work for you but, could you try to push her bedtime back an hour or two, or even as late as 11:30, that might make her tired enough to last a few solid hours asleep in the middle of the night. My kids generally go to bed between 11pm and midnight because I like to sleep later in the morning and this has always worked for us. Have you tried hylands calms forte? It did help when my now 4.5yo was younger, he is by far the night owl of my kids and will frequently stay up until 2 or 3 am, this helps him to get down earlier and it is gentle.<br>
I hope that you find something that works for all of you<br>
Take care<br>
Laura</div>
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Hi I wrote the list of things I've tried in my original post and calms forte is one of them. Its like giving her a placebo, it does nothing. I can't let her stay up late because I am also a full-time student and I do all my work in the evenings. Plus we have tried it before and it doesn't help at all. I wish it would.
 

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Discussion Starter · #17 ·
<div style="margin:20px;margin-top:5px;">
<div class="smallfont" style="margin-bottom:2px;">Quote:</div>
<table border="0" cellpadding="6" cellspacing="0" width="99%"><tr><td class="alt2" style="border:1px inset;">
<div>Originally Posted by <strong>Bookmama</strong> <a href="/community/forum/post/10764472"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">Your daughter sounds exactly like my son at that age. Exactly. And I remember what a sleep-deprived nightmare it was. We tried everything, including medication.<br><br>
The thing that finally worked was getting him into OT. Within a week of starting the brushing protocol, he was sleeping through the night. We were absolutely shocked--it didn't seem real or possible, but there you have it. I worship that little brush!</div>
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Pardon my ignorance, what is OT and brushing?
 

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Discussion Starter · #18 ·
<div style="margin:20px;margin-top:5px;">
<div class="smallfont" style="margin-bottom:2px;">Quote:</div>
<table border="0" cellpadding="6" cellspacing="0" width="99%"><tr><td class="alt2" style="border:1px inset;">
<div>Originally Posted by <strong>Bookmama</strong> <a href="/community/forum/post/10764472"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">Your daughter sounds exactly like my son at that age. Exactly. And I remember what a sleep-deprived nightmare it was. We tried everything, including medication.<br><br>
The thing that finally worked was getting him into OT. Within a week of starting the brushing protocol, he was sleeping through the night. We were absolutely shocked--it didn't seem real or possible, but there you have it. I worship that little brush!</div>
</td>
</tr></table></div>
Pardon my ignorance, what is OT and brushing?
 

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Discussion Starter · #19 ·
<div style="margin:20px;margin-top:5px;">
<div class="smallfont" style="margin-bottom:2px;">Quote:</div>
<table border="0" cellpadding="6" cellspacing="0" width="99%"><tr><td class="alt2" style="border:1px inset;">
<div>Originally Posted by <strong>chantald</strong> <a href="/community/forum/post/10764496"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">My first would do this, to a degree. He would go to sleep and around 1 am, wake for hours. Most of the time he just stayed in his room and talked to himself. Nothing I did would get him to go back to sleep.. he would wake for the day at 6 am..and be full of energy.<br><br>
I got a sound machine for my room to help drown out the little noises, but not the "i need you" noises.<br><br>
It turns out that my son has signifigant SPD and started getting OT at age 3 (we also used a brushing protocol) along with a weighted blanket, made a big difference for him!</div>
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They have a white-noise machine in their room, have since birth. I have wondered if my daughter has SPD because she has problems with textures of food, and major problems with her clothes. The one time I put her in short sleeves and then tried to put her into a jacket that has synthetic fabric that looks like a lamb and she started screaming as soon as it touched her arms saying, "Ow, ow!" Her boots have the same fabric in them and I once put her feet in without pulling her pant leg down and when her skin touched the fabric it was the same reaction. There are other concerning things too but those are the ones that stand out.
 

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Discussion Starter · #20 ·
I don't know what OT is but how do you go about getting it? I am in Ontario, if that makes a difference. Also how do you get a diagnosis of SPD? I am a little worried that it is early signs of bipolar because sensory processing issues and sleep issues are both a symptom of bipolar. I am bipolar with severe sensory issues and my 7 year old is in the final steps of finalizing his bipolar diagnosis as well. But even to start with some acknowledgment from somewhere that there is something off with her, even to just focus on the sensory issues for now, would be wonderful. I just can't take it anymore.
 
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