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<p>I'm having right lobectomy of my thyroid first week of January.  I have multiple nodules that have been steadily growing for 10 years and this past year the right lobe has had a LOT of growth.  They have tested benign before but endo wants it out because she feels it's too large and too fast growing.  Plus I'm having discomfort on my windpipe because of it.  The right lobe is twice the size of the left lobe.  They will do a section analysis while I'm still on the table at the surgery, if it's cancer they will take the whole thing out right then and there.  Endo tells me there is 50% chance I'll be hypothyroid after surgery and will require supplemental meds.  I having blood labs checked approx 2 months after surgery.  My thyroid has always functioned normally, neither hyper or hypo.  I *may* have had thyroiditis earlier this year, I had swelling and pain and major hair loss for about 2 months.  By the time I got in to have labs done everything was normal again.</p>
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<p>So if you've had this surgery:</p>
<p>Did you become hypo?</p>
<p>Do you take meds?</p>
<p>How much did it hurt?</p>
<p>Did you lose any hair?</p>
<p>How long after surgery did you start feeling like your old self again?</p>
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<p>Thanks!!!!!!!</p>
 

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<p>Hi! I had a total thyroidectomy for papillary carcinoma 14 years ago, when I was 20. Because they took the whole thing out, I am on replacement hormone (levothyroxine) for life. It is not a big deal--the medication is one of the few (only) category A for pregnancy and L1 for breastfeeding (safest). I had some pain afterward but I went back to college two weeks later. I was very tired but at that age, I bounced back quickly. I did not lose hair or have any symptoms of hypothyroidism, since I started taking the medication immediately.</p>
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<p>The only potential problem is the radioiodine treatment that is sometimes given following surgery to remove any remaining tissue. I don't think they'd do this if your nodules are benign. There are no side effects but you have to be isolated. So as a parent, I think it would be hard. Also, you have to wait a long time to resume breastfeeding following treatment, as there is radiation in your milk. Here is an interesting study.</p>
<p><a href="http://www.ncbi.nlm.nih.gov/pubmed/11138223?dopt=Abstract" target="_blank">http://www.ncbi.nlm.nih.gov/pubmed/11138223?dopt=Abstract</a></p>
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<p>The good news is that you can usually postpone treatment after surgery. For example, I had surgery in August and wanted to go back to school. My doctor let me have the radioiodine during spring break in March. I have been cancer free for 14 years and have only annual blood tests to check for recurrence.</p>
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<p>Let me know if you have any more questions!</p>
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<p> </p>
<p>Did you become hypo?</p>
<p>Do you take meds?</p>
<p>How much did it hurt?</p>
<p>Did you lose any hair?</p>
<p>How long after surgery did you start feeling like your old self again?</p>
<p> <span style="display:none;"> </span></p>
 

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<div class="quote-container"><span>Quote:</span>
<div class="quote-block">Originally Posted by <strong>marimara</strong> <a href="/community/forum/thread/1285620/thyroid-surgery-who-s-had-it#post_16117844"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a><br><br><p>I'm having right lobectomy of my thyroid first week of January.  I have multiple nodules that have been steadily growing for 10 years and this past year the right lobe has had a LOT of growth.  They have tested benign before but endo wants it out because she feels it's too large and too fast growing.  Plus I'm having discomfort on my windpipe because of it.  The right lobe is twice the size of the left lobe.  They will do a section analysis while I'm still on the table at the surgery, if it's cancer they will take the whole thing out right then and there.  Endo tells me there is 50% chance I'll be hypothyroid after surgery and will require supplemental meds.  I having blood labs checked approx 2 months after surgery.  My thyroid has always functioned normally, neither hyper or hypo.  I *may* have had thyroiditis earlier this year, I had swelling and pain and major hair loss for about 2 months.  By the time I got in to have labs done everything was normal again.</p>
<p> </p>
<p>So if you've had this surgery:</p>
<p>Did you become hypo?</p>
<p>Do you take meds?</p>
<p>How much did it hurt?</p>
<p>Did you lose any hair?</p>
<p>How long after surgery did you start feeling like your old self again?</p>
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</div>
<br><br><p>I had a benign goiter that was sitting there for 16+ years, then suddenly started taking off growing.  The surgeon came well-recommended and I checked as much as I could on her beforehand.    The surgeon was concerned that a needle biopsy would miss any cancerous spot.  The goiter had to be removed in any case, because it would soon cause me trouble breathing and eating.  She said that she could just take out the one side, which appeared much larger than the other.  But if cancer was found, she would have to do another surgery to get the other side.  So she said she preferred to do a total thyroidectomy in my case.  I had already been on Synthroid those 16 years, to keep it from growing, so it was no change having to be on Synthroid after surgery.  While talking with the surgeon the first time, she recommended me to go to a hematologist who discovered a bleeding disorder.  Good thing, since a lot of blood goes through that area.  When they went in to take the thyroid out...turns out it was all on one side (malformed), and there was no thyroid on the other side.  (Not sure what they were seeing on the imaging, but it wasn't a thyroid on that side.)  I also only had one parathyroid that the surgeon could find (there should be 4), and she was able to save that one.  You only need 1/2 of one parathyroid for normal parathyroid functioning.  Aside from the few surprises I just explained, everything went okay.  There was a fair amount of pain for awhile.  I don't remember exactly how long.  At least the first few days were painful and hard to move the neck.  I needed help doing just about everything.  I did not lose any hair.  No hair issues at all.  But I never had hair issues before either.  They did a frozen section of the removed thyroid and found no cancer.  I did have a reaction to the adhesive used on the big adhesive patch they used to cover the incision.  My skin was red and annoyed for awhile because of that.  I also started reacting to a bunch of things...I'm not sure but I think the removal of my thyroid triggered some kind of adrenal stress reaction.  If I had it to do again, I'd do some adrenal support supplements before going into surgery.</p>
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<p>It was probably about 4 to 6 weeks before I was feeling normal and going back to work.  For awhile I used scarves and turtlenecks to cover the scar, as it was initially not so pretty.  But as it faded I didn't worry about it so much.</p>
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<p>Since they didn't find cancer, I wondered why all of a sudden my goiter started to grow.  The doctors had no clue.  So I did some reading on my own and figured out that about a year before they discovered the rapid growth, I had changed my diet and had been eating a lot of soy -- which, to my surprise, is a goiterogen.  Why had no one warned me not to eat soy?  There should be warning labels on it.  Ugh.</p>
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<p>Anyway, if you have any other questions, just ask, or PM me.</p>
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<p>And BTW, when the thyroid functions normally, neither hypo nor hyper, it's called euthyroid.</p>
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<p>ETA: Due to my bleeding disorder, my parents volunteered to do a directed blood donation ahead of time for me just in case I should need any blood.  (They are both the same blood type as me.)  I didn't need any, but it was nice to know that the blood was available.</p>
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<p>ETA 2: I should also note that I didn't have my son until after this whole thyroid thing was over, so I didn't have any children to worry about while recovering.  If you do, then you'd need to have someone care for them pretty much all the time at least for 2-3 weeks.</p>
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<p>ETA 3: I did not have the radioiodine treatment that the PP had, because mine didn't turn out to be cancerous.</p>
 

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<p>I also had a partial removal but then they found out that it was cancer. I went back to have the whole thing removed. Honestly, I kind of regret it. IU wish I looked into other options. I have since learned that they do exist! There are ways to treat it without thyroidectomy and radiation. I am now on synthroid for the past 4 years since the surgery and switching to armour thyroid next week. I for the most part feel great but there are a few lingering effects that I know are from only taking a pill that is T4. I will say that it took many months after the surgery and synthroid for my brain to adjust. I had spiraled into a very unhealthy state. All is well now but Im not sure it would be if I didnt really spend all my energy (besides the energy carng for DD) on my health. I find there isnt much room for bad habits. I didnt lose any hair. I in fact think my hair is thicker than ever! The lingering feeling of the brain really got me for a year or two.</p>
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<p><a href="http://www.stopthethyroidmadness.com/" target="_blank">http://www.stopthethyroidmadness.com/</a></p>
<p>this is a good site if you want to read .... its not mine but i really identify with the info..<br>
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<p>I also had a partial removal but then they found out that it was cancer. I went back to have the whole thing removed. Honestly, I kind of regret it. IU wish I looked into other options. I have since learned that they do exist! There are ways to treat it without thyroidectomy and radiation. I am now on synthroid for the past 4 years since the surgery and switching to armour thyroid next week. I for the most part feel great but there are a few lingering effects that I know are from only taking a pill that is T4. I will say that it took many months after the surgery and synthroid for my brain to adjust. I had spiraled into a very unhealthy state. All is well now but Im not sure it would be if I didnt really spend all my energy (besides the energy carng for DD) on my health. I find there isnt much room for bad habits. I didnt lose any hair. I in fact think my hair is thicker than ever! The lingering feeling of the brain really got me for a year or two.</p>
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<p><a href="http://www.stopthethyroidmadness.com/" target="_blank">http://www.stopthethyroidmadness.com/</a></p>
<p>this is a good site if you want to read .... its not mine but i really identify with the info..<br>
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<p>hi-- sorry you're having this!</p>
<p>So if you've had this surgery:</p>
<p>Did you become hypo? <span style="color:rgb(128,0,128);">I did not.  I initially began having testing done but the only endocrinologist in town isn't such a nice person and i felt that the numbers on the scale didn't match how i felt even though they were "normal." </span></p>
<p>Do you take meds? <span style="color:rgb(128,0,128);">i do not.</span></p>
<p>How much did it hurt? <span style="color:rgb(128,0,128);">honestly, it was a long and extensive surgery.  it was pretty bad.  but i react badly to pain meds too, so that may have been part of the problem for me.</span></p>
<p>Did you lose any hair? <span style="color:rgb(128,0,128);">no</span></p>
<p>How long after surgery did you start feeling like your old self again? <span style="color:rgb(128,0,128);">it's been over 10 years since i had the surgery.  i had some bad periods where i felt like the meds couldn't be regulated the way i needed them to be, so i did stop taking them altogether, since i only had a partial, and they left half the para thyroid as well. </span></p>
<p><span style="color:rgb(128,0,128);">things that helped: i did lots of yoga, spent some time exploring the fish pose & the alternates.  shoulder stand, etc.  i really feel like at the time that helped lots.  if you are planning on getting pregnant, make sure they test your thyroid before and throughout the pregnancy.</span></p>
<p><span style="color:rgb(128,0,128);">good luck, i think finding a physician who is good may make a difference (which i unfortunately couldn't do) <3</span></p>
 

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Discussion Starter #7
<p>thanks everyone who responded!!!</p>
 

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<p>Well I'm 3 days post op and thought I'd share my experience.  After surgery I was in a lot of pain, took the pain meds, spent one night in the hospital.  The pain is tolerable now at 3 days post op, but I'm still quite dizzy.  The dizziness comes and goes.  The frozen section during surgery was negative for cancer but I'm still waiting for the full path report.  I get the results in a couple of days.  If it is cancer after all they will do another surgery to remove teh rest.  The doc took out the right lobe and the isthmus leaving only the left lobe, which was the smaller of the two.  I'm not on antibiotics or any meds right now, except the pain meds which I haven't taken today yet.  My neck is still pretty sore from the position it had to be in for the surgery.  They did internal stitches and glue on the outside, no drain.  For the first 2 days my neck, shoulders, arm and head hurt pretty bad, I guess due to the position of surgery.  I had a migraine in the hospital from the anesthesia.  The only remaining symptom I have is dizziness and tiredness which I guess is normal.  Either leftover from the anesthesia, or from my little lobe of thryoid adjusting to doing all the work.  I will see in a couple of months if I need replacement thyroid hormone, my endo told I had about 50-60% chance of needing it after surgery.   And my scar looks pretty rough, like slasher movie material.  I'm hoping it fades! Oh and I can't drive for 7 days, partly due to pain meds, and that I can't turn my neck completely.</p>
 

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<p>I'm glad to hear it went relatively well, and that the initial finding is negative for cancer.  The scar will fade somewhat over time; it won't always look that angry.  You'll probably want to pull out some scarves to wear for awhile when you start going out.</p>
 
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