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Discussion Starter · #1 ·
my daughter is 2.5 years old. A three weeks ago she had 2 seizures, we are still waiting to see a pediatric neurologist about them. There have also been 2 other possible seizures that happened (one at night one at naptime) I say possible becouse I did not get a good enough look to see what was physically happening with DD. It sounded like she was having a seizure though.<br>
DD is also a toe walker. She has *always* walked on her toes. She is capable of occationally standing and running flat footed but I have suspicions about her physically. There are small things about the way she walks and runs that bother me. When I walk my feet flex and move, it seems like my DDs feet don't when she is flat footed. The whole foot goes down at once and is picked up at once. But she is almost never flat footed so it is hard to say if this is even real or if i am grasping at straws.<br>
My MIL thinks that the toe walking is sensory related. This is possible.<br><br>
I guess I am wondering if the two things could be related?<br>
they both seem neurological.<br><br>
I am going to bring it up at the neurologist office but at the rate this is going that is going to be a few months from now. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad">
 

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Why are you having to wait so long? <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad"><img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug"><br>
If she has another seizure (maybe if she doesn't even and certainly for a "maybe" one) I'd take her to the ER. Her doctor can order an EEG now even if you do have to wait. Also get video of any seizures for the neurologist. There are lots of moms here with seizure experience who can give you advice. Try the special needs board.<br><br>
The toe walking...I'd be concerned about the muscles there. It needs corrected. So a pediatric orthopedist. Even if it is sensory the muscle can become permanently short there with enough toe walking. But I suspect there is actually something physical going on. Does she have any developmental issues?
 

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Discussion Starter · #3 ·
we have to wait so long becouse our insurance took their sweet time processing our referal. And now the doctor is taking their sweet time calling us to schedual an appt. I am frusterated and that is affecting my attitude. If I see another seziure I am suppost to take her to the ER, I didnt with the two possibles becouse I was not sure if it was anything.<br><br>
Her old pedi was really horrible to me when I tried to talk to her about my DD -this was over a year ago, she said that the only thing wrong with my DD was me. I am nervous about dealing with doctors. I dont want them to write me off and say that this is nothing. I am really worried that they will.<br><br>
I have been worried about the toe walking for a long time, it always seemed to me that it would be better to correct it young, before habits are to deeply engrained. I have tried to get her refered to a doctor for it but the old pedi wouldnt even examine her she said that is was nothing and they will do nothing until she is 3.<br><br>
She has never had any big developmental issues but her speech is hard to understand and she did not talk until she was almost 2.<br>
Even though she has met all of her milestones within the ranges some of them have been on the late end.<br><br>
It just seems odd to me that she would both toe walk and have seizures and have then not either be connected or have at least one of them be part of something bigger.<br><br>
My mom told me that Autistic kids are more likely to have seizures. She wanted to prepare me for the possibility that the doctor will say she is autistic. But my mom has not seen my daughter is almost 6 months.
 

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I have heard that toe-walking *can* be a sign of autism, but that doesn't mean that it *is*. I think you need to be looking for a new ped. Don't let them fob you off. Keep talking until you find someone who will listen to you. There are a million doctors out there. Maybe you might have more success with a ND. I hope you get some answers soon. You might have to be pushy but sometimes that is the only way. Some of them will write you off, so you have to keep looking. Good luck.
 

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Discussion Starter · #5 ·
she is not seeing that pedi anymore. She is seeing a very nice GP. But he is old and can handle ear infections but not anything that is not common. I have not talked to him about the toe walking yet. I was waiting for her to get closer to 3 so that they would take me more seriously.<br><br>
My daughter has some flags for autism but I really am not worried about it. Every one in her playgroup agrees, and I trust their opinion becouse they see her with other kids and they interact with her weekly. She is more or less fine. Her language is slightly deleyed but I think it is more likely that she has some mild sensory issues then autism. I am getting tired of people that barely know her and are not doctors diagnosing her. (my MIL becouse she toe walks, my Mom was becouse my DD loves to spin around in her princess dresses)<br>
And mothering has introduced me to the concept of...I cant remember the name anymore. But I learned from it that even if my daughter does have sensory issues or autism that she is still who she is and she can and will still have a great life. And that is what really matters.<br><br>
I have too much free time to think about all of this and to worry about my daughter. And today the toe walking occured to me.
 

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Discussion Starter · #6 ·
so I just googled seizures and toe walking and I got Rett Syndrome.<br><br>
I think that I am going to try and forget now. The internet is bad.
 

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No!! Don't forget it. I know what it feels like to read something and be scared. I do. But information is always good. A name for something doesn't change whether it is true or not. It just gives you ways to help.<br><br>
She doesn't have Rett Syndrome. At this point she would have had a major regression in all skills after a period of near normal development. Her growth would have failed. She would be doing things with her hands. The things you're describing aren't Rett Syndrome.<br><br>
My son has an autism diagnosis. He probably doesn't seem autistic to people in general. He's social and friendly and cuddly.<br><br>
But that aside, do take her to the ER if you see something. Then they will likely order an EEG. The GP can order one too. He may be a GP but he surely has done some initial testing for seizures before. If you had the EEG before you saw the neurologist you would have more information for him/her. And a clean EEG doesn't necessarily mean no seizures either. But they generally order an initial one before ordering any longer ones.<br><br>
The thing is that autism plus seizures is often a sign of something else medical going on. My son for example has a metabolic condition. Sometimes those something else going on things can be treated. So while autism doesn't at all change who she is it might be an important piece of information in helping her. If you want a link for an online autism assessment let me know.<br><br>
Contact early intervention in your state. They will provide an assessment for free. A speech person can assess her and so can a physical therapist. She may have something like short tendons that are causing the toe walking. Early intervention is no longer provided at age three. So it's not something to wait on.<br><br>
I know what it feels like to be told you're worried over nothing. I was disregarded too. But mommy worries are pretty accurate in general. And a good doctor is a good listener. Don't let one bad one scare you away from getting help for your daughter.
 

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Discussion Starter · #8 ·
Thanks<br><br>
I have taken autism screening test for her before and she usually comes up in the middle risk range,<br>
She is so much like me personality wise. I was a kinda late talker too, very hard to understand, and very tantrum-y. She is so much like me, and I am fine. There is nothing about her that is hurting her life, she is able to communicate as much as she wants to and she eats a healthy diet. She has friends as much as any two year old does, is a happy kid that really does not throw that many tantrums. All in all I think that she is a very happy kid who happens to toe walk and have occational seizures.<br><br>
I am really wondering about the metabolic thing that you mentioned?<br>
How could I learn more?<br>
Becouse she is so much like me...We both *love* milk. Like drink a gallon a day love milk. I stoped drinking milk about a month ago and noticed such a diffrence in my emotional wellbeing, my energy, and my mental stability. It was huge.<br>
DD had ear infections (3) last year so I decieded to preventivly take her off of milk too, she has been off of milk (just milk) for 2 weeks or so now and she has seemed mellower, better eye contact, more conversational, cuddly-er and more affectionate, her coordination seems better too. she is triping less.<br><br>
you think there might be a connection?
 
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