[2boyzmama]

I know there are at least two of you on here dealing with VUR...I have a friend whose 8 month old was just diagnosed with at least Grade IV (VCUG showed it refluxing all the way to the kidneys, and the kidneys are enlarged). She doesn't see a urologist until June, in the meantime she's on a high dose daily antibiotic.<br><br>
One of you gals had a blog about it?? I want to send her the link, but I can't remember which one of you it is (Lizzie's mommy maybe??)<br><br>
Thanks!!!

 

[Lindsay1234]

VUR here but not the blogger. Id love to read that blog though!<br><br>
Dd2 is grade 5 and is on abx too, at least for 3 years!

 

[workjw]

<a href="http://kidneyreflux.info" target="_blank">kidneyreflux.info</a> is a site I have about kidney reflux and Lizzie's story. I don't really keep up with the blog very well, but the site has lots of reflux information/articles and tons of links. Hope it's helpful.<br><br>
Are they keeping her lo on high dose abx until June? She should normally be on high dose for 10 days and then go down to a prophylactic daily dose (around 1/2 dose I think) after that. There is also a good <a href="http://www.facebook.com/?ref=home#!/group.php?gid=16728308730" target="_blank">group on facebook</a> that's pretty active.<br><br>
(am I allowed to put that link up? if not I'll take it down)<br><br>
eta - you might want to warn her that our experience with VUR has been a little more difficult than most <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/thumb.gif" style="border:0px solid;" title="thumbs up">

 

[Lindsay1234]

Your blog link says server is down, Id love to read your journey!<br><br>
Were int he beginning stages (dd2 is 1 yr old now) and Id love to have an idea of the things to come!<br><br>
Thanks for the FB page too, awesome!

 

[2boyzmama]

THanks!! I've forwarded it on to her <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile">

 

[workjw]

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<div>Originally Posted by <strong>Lindsay1234</strong> <a href="/community/forum/post/15355658"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">Your blog link says server is down, Id love to read your journey!<br><br>
Were int he beginning stages (dd2 is 1 yr old now) and Id love to have an idea of the things to come!<br><br>
Thanks for the FB page too, awesome!</div>
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</tr></table></div>
I'm not sure why you are getting that error? You might try <a href="http://www.kidneyreflux.info/Lizzie%27s%20Journey.php?" target="_blank">this</a> link. It isn't to the blog, but just Lizzie's story. Let me know if you can't get this one to work.<br><br>
Hope your dd is doing well with the abx, and not having any breakthrough infections. VUR is sometimes a roller coaster, but most kids do really well on the abx.