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Discussion Starter #1
I have been taking 40 mg prednisone/day for 3 weeks due to an unusual thyroid issue. I'm starting to wean off it- doc told me to reduce by 1/2 pill a week until I'm off. If my body can't handle this and my labs come back strange, I'll have to be referred to an endocrinologist. of course, I'd love to wean off and go on my merry way. I'd like to wean off a little more quickly as I hate the side effects of this particular drug. I originally was supposed to drop by a whole pill every few days and that was too fast. I think I want to try somewhere in the middle- like 1/2 pill every 3-4-5 days. Anyone have any idea if this will work?<br><br>
I'll call on monday to check w/the office, but not something to make an after hours call about.<br><br>
Thanks
 

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Sorry, but Prednisone is nothing to be screwing around with. I would follow the 1/2 pill decrease every week, until you are off.
 

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I'm an RN and I have lupus so I have personal and professional experience. I don't know if you are currently taking 4 10mg tablets right now or not. But if you are, then definitely do what the Dr. said. If you come down off corticosteroids too quickly you can get a rebound effect and be even worse than you were before you went on the 'roids.<br><br>
I avoid taking corticosteroids at all costs by using homeopathic/lifestyle treatments/choices to help prevent flare-ups, but I have had to take corticosteroids a few times. The side effects do suck, but so does being sick.<br><br>
Best healing to you.
 

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Bless you! My dh is currently weaning off prednisone after finishing radiation treatment for a pituitary tumor. Definitely do it as the doctor says. If you don't the side effects are horrid. It has taken DH almost 2 months to wean down to 9 mg from 20 mg. And he HAS to take cortef anyway because he makes NO cortisone on his own (due to previously mentioned tumor). He has done a lot of reading on Pred and announced the other night that he had come to the conclusion that Prenisone is SATAN <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/FIREdevil.gif" style="border:0px solid;" title="devil"><img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/demon.gif" style="border:0px solid;" title="demon"> . Unfortunately he had no choice and it sounds like you didn't either. Just be careful and follow the instructions you were given! <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug">s
 

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Discussion Starter #5
Thanks. I am currently taking the 10 mg tablets. So, if I drop 1/2 pill a week, it's cutting back 5 mg each week until done. I was hoping I wouldn't be on it too long,but that's not the case, obviously. I've been on prednisone for my asthma as a kid and for a severe allergic reaction once- maybe 5 times total in my life and never more than 10 days or so each time- start to finish.<br><br>
So, for this to come up and be on such a high dose for so long and then to take so long to get off it is scary for me. I was dx'd with subacute glandular thyroiditis (aka painful thyroiditis) which is basically a virus that attacks the thyroid and creates horrible pain. I was practically od'ing on ibuprofin before he gave me the prednisone to reduce the inflamation- I felt like my throat was swelling shut, I could barely swallow, pain radiating up to my jaw (symptoms mimic TMJ and it's often mis dx'd). It can take up to 6 mos for this virus to clear completely.<br><br>
Thanks again!
 

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That sounds horrible! Your poor thyroid <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad"> What's the prognosis? Do they think there's been and long-term damage or will normal function resume? Keeping my <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/fingersx.gif" style="border:0px solid;" title="fingersx">: for a good prognosis.<br><br>
I also wanted to assure you that 40mg really isn't that high of a dose. It's a high dose for you, sure, but I've been on 180 mg a day after coming off a solumedrol drip for two weeks. Due to being on a solumedrol drip before switching to prednisone it was a long and difficulty journey for me (16 months) with two rebounds and lots of adjustments and bloodwork. I'm pretty confident you'll be able to wean off the 40 mg like a champ given your history!<br><br>
What side effects are you having? It's important that you have your cortisol level checked if you continue having the side effects after weaning off the 'roids. I got off Scott free, but a friend of mine had cortico-insufficiency after taking a course of them. I, on the other hand, have a lot of stretch marks and extra weight as a result of my treatment.
 

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Discussion Starter #7
Prognosis is they don't really know. Could be nothing, could be permanent hypo or hyper thyroidism. Could take 1-6 mos to be done, basically, it's a wait and see. It's a 1:10000 thing, apparently. Pretty fascinating. I'm a teacher and our school is an RN- she's loving the updates as it's such an unusual thing. The doc was pretty excited with the dx as well- he said I was an interesting case.<br><br>
I'm sure the side effects will go away when I'm off, but now I'm having mood swings and weight gain. The rebounds I'm not too worried about since ideally, once the thyroiditis is gone, I'm only dealing w/the effects of the prednisone- not like a long term illness/condition- and as long as I go off slowly enough, I won't have a problem.
 
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