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Wow, what a miracle baby you have there. I had to pop in to see how little Maggie was doing. Glad things are still progressing well. Take care!
 

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wow, that's wonderful news about Maggie. I love the updates. What a special little gal you have there.<br><br>
B
 

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HOoray! <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/thumb.gif" style="border:0px solid;" title="thumbs up"> I was really, really hoping that when I checked in with this thread there would be an update with good news <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug"> Terrific!!! <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/love.gif" style="border:0px solid;" title="love">
 

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I just came across this post today. I wanted to say Congrats!! and Welcome Maggie!!!!!<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/love.gif" style="border:0px solid;" title="love">
 

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Hi, Amy!<br><br>
A huge congratulations on your Maggie! It sounds like she is doing so well, which is just beautiful!<br><br>
Please let me know if there is anything I can do to help. I am a phone call away!
 

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Discussion Starter #87
Thanks Elena- actually your dinner was great, perfect for Ash Wednesday and our lent time in general since we usually do not eat meat during lent.<br><br>
We are also kind of in high spirits here since the Dr was talking today about when Maggie would go home which would hopefully be early May. We had not even thought about that or when that would be! Now their biggest concern is getting Maggie properly nourished and avoiding infection and getting some meat on her bones! She has been off the vent for over 48 hours and she looks way more comfy!
 

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I'm so glad the dinner was OK!<br><br>
It sounds like Maggie will get herself plumped up in no time with that mama milk you have been producing so abundantly! And May, WOW! She will be home in no time!<br><br>
Again, let me know if I can help in any way!
 

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May! Yay! What a great Mother's Day gift! So glad to hear she's doing well.
 

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Sounds like she is going great! I am so happy for you<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile">
 

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Hi Amy,<br>
I just posted a long reply to another preemie mama in the May DDC. I wanted to offer my congratulations on the arrival of your new baby! I'm sorry you're experiencing the NICU life right now, it is very hard. I want to reccomed the Premature Baby Book by Dr. Sears. I found it really helpful. Also, there is a support thread in birth and beyond for NICU parents. My daughters were not as early as yours, but I know some here have experienced a very preemie baby, and hopefully they can offer lots of support and advice. Giant hugs to you mama, I know it wasn't the birth you planned.
 

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Amy- Have to just poke in and say congrats on Maggie and know that I am thinking good thoughts for her and all of you! Also wanted to let you know that I work with a lot of preemies and am always amazed at how well some of the tiniest babies do developmentally. In my opinion, it's the babies that have the most emotional support from their caregivers that do the best! I'm sure she will do well. Best wishes and Congrats again!<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile">
 

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Discussion Starter #93
Thanks all you mamas popping in! I know most of you from other boards so it means a lot!<br><br>
The Dr sears book I orderd a few days after Maggie was born along with a great book for dd "No bigger than my teddy bear" which has been a godsend!<br><br>
We are thinking of getting some more of those books and leaving them in the NICU waiting room for grandparents etc to read to some of the kids who are in there. Also putting some more toys in there if they will let us.<br><br>
Also if we ever come into serious money, we are donating a nicu parking lot to the hospital. $3 a day is not the end of the world, but for some I am sure its a huge debt!
 

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Ask your social worker (they usually assign one to ALL NICU parents, so don't be alarmed) or someone else who knows the ropes if they can get you a temporary parking pass. We were given one when Hazel was in the NICU (of course my parking lot charged HOURLY) and it helped a lot. As you said, $3 a day isn't ll that much, but if your baby is going to be there until May,it is going to add up!
 

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Yes on the parking lot thing...when my daughter was in the NICU (it was a month and a half the first time) we got free parking AND a discount on public transportation. My train pass was great when I was so exhausted I couldn't drive into the city anymore.<br><br>
And I LOVED my social worker at CHOP. She forced me to attend this parents coffee get together thing they had, I didn't realize how much I needed support of people who were there too.<br><br>
Also, I know here in PA, they put children who have a "handicap" (or illness, I don't know about premies) on state health insurance. At first I didn't sign up for it, but she (social worker) convinced me "just in case". What a god-send that first year or so....It covered all my co-pays. WIth my daughter seeing a specialist twice a week for a while, that added up.<br><br>
ANyway, I know you don't want to worry about these things now, but the hopsital is so much easier to get the info from.....<br><br>
Praying for you guys...<br><br>
~C~
 

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Discussion Starter #96
Caroline- thanks for the tips!<br>
As far as parking, its about 3 bucks a day with in and out privilages so we always get a receipt. Also as the weather gets warmer in the next few weeks we will park across the st at the forest preserve parking and walk an extra 50 yards. Also there is another set of buildings a half a block away we can park at when the weather lets up. We have already left a car there when we met and then parked one in the paid lot.<br>
Thankfully this hospital is 15 minutes away. Its a left turn onto the main drag right by my house and then 10 minutes later, a right turn. 5 minutes to get to Maggie after that!<br><br>
I do know in our state that anyone one born before 30 weeks automatically is eliglble for Early Intervention. We have not had any social workers talk to us at the hospital. But we are really not looking to talk to anyone either. Since dh is in the medical industry, we already have contacts with several people and have things rolling if need be. Also our insurance ppo after our deductable is met, is covered 100%. Never mind what the deductable is, but that was met pretty quick with all that has happened. But I will look into the other coverage.<br><br>
And as for Maggie today- she is now at 10ccs of bmilk every two hours and they are going up daily. They ran out of my milk as of later tonight so dh is dropping off a bunch tonight and taking his brother/Maggie's Godfather to see her too. But I pumped a few onces just in case when we were there today.<br><br>
We have started a schedule to visit. Since we cannot visit between 9am-noon so they can do rounds etc, I visit when dd is at preschool on Mon,wed, fri afternoons. I drop her off and then go pick up dh and we go until about 2:30pm. Then we may go again later on and take one of the grandparents or just one of us. On Tues/thurs we try to go later to see the pm staff. On weekends its all over the place. We also call a lot during the day which they encourage. I think when we can pick her up more and hold her, we will increase the hours we spend there. Also we will be taking dd starting this week. Tomorrow (tues) hopefully.
 

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Amy, it must be so hard not to see your baby every day. I was wondering how you managed so much time on MDC with a baby in the NICU, I figured you were using a computer in a parent room or something. I was wondering, how will your friend and ds see the baby? I know here no one but parents can go into the NICU, once the baby is stable and off everything and is just a feeder/grower they can be moved to a window and shown off but no one is allow in the NICU but the parents.
 

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Discussion Starter #98
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<div style="font-style:italic;">Amy, it must be so hard not to see your baby every day. I was wondering how you managed so much time on MDC with a baby in the NICU, I figured you were using a computer in a parent room or something. I was wondering, how will your friend and ds see the baby? I know here no one but parents can go into the NICU, once the baby is stable and off everything and is just a feeder/grower they can be moved to a window and shown off but no one is allow in the NICU but the parents.</div>
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Actually we have seen her every single day since birth. I missed the day after but dh (being very ap) was at her side from a second old. The hardest part for us and still is- not having her right at our side but we know this is best. It was physically painful for both of us the first few days but as we see her progress we look forward to getting her into our home and taking care of her the way we did dd1. We have stopped breaking down into crying fits every hour and no wwe are happy seeing her progress. It also helps having dd1 around. She has been our savior in a way since she forces us to smile and see positives for her so she can go on with her way of life too.<br><br>
Parents can visit any time of day unless its rounds. But one visitor at a time can go in with one of the parents. Siblings can come once in a while with the parents and we had to show proof of immunzations before she could enter. We have limited her visitors at this point just to grandparents.<br><br>
I am on MDC PAKing (PUMPING at the keyboard) and since I pump at least 100 minutes a day, its 100 minutes on mdc<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/winky.gif" style="border:0px solid;" title="Wink"> better than tv!
 

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Also if we ever come into serious money, we are donating a nicu parking lot to the hospital. $3 a day is not the end of the world, but for some I am sure its a huge debt!</div>
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You have got to be kiding!! they charge you for parking. thart is so wrong. That would have been a hardship for me when dd was in the NICU. We were so broke. I hardly even ate when she was in there beause we couldn't afford cafateria food (turns out it was free). wow, that just makes me mad. Moms at our hospitals get valet parking and a special elevator at the door that goes only to OB and peds. so that post partum moms and people who have kids ust don't have to mess around.
 

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amy.<br><br>
Thank you for sharing your story of your new precious girl. Maggie sounds amazing, as do you and your family. I assume you receive Mothering magazine -- but if not, I just got mine and it had an excellent article on preemie babies. It discussed kangaroo care, breastfeeding, plus had many links to other sites about preemie care. Hope you have found it helpful. Take care of you.<br><br>
lagomama.
 
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