He is officially "special needs".
Kai has neurofibromatosis. Until now he was pretty much with his peers at school, but yesterday we had a meeting with his teacher, vice-principal, spec ed teacher and an OT where a plan for his learning was hashed out. They were great, caring, and really seemed to know Kai as an individual. We made a plan for full testing (likely not through them; I think we are going to do it privately, at our expense, so we can retain control over the information) and the creation of an Individual Education Plan.
One hand I am glad that we can now create a plan of learning and education that meets his needs better, and allows us to opt out of some of the curriculum and evaluation that doesn't work for him, but I am also feeling really sad that he's, well, being affected by his disorder to this degree.
I feel like it's all real now, no pretending, no getting out of it, no luck and hoping will make it go away, REAL. He's passed over the threshold of being a little different, to a lot different. The rebel part of me is secretly pleased he is different from most, but then I feel guilty because I know that he works ten times harder than most other kids, and he just wants to belong and be like everyone else. he other part of me is mourning his abilities being on the same spectrum as his peers, and they are clearly not.
Anyways, thanks for listening. I just love him so much and feel like the world is hard enough without things being harder, and without being different.