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Discussion Starter · #1 ·
Hello! My DS is 14 months old, and may have Cerebral Palsy. He absolutely has low muscle tone and I believe it affects his bowels. We're talking near-constant constipation, and he's often in pain. Now, his ped recc'd mineral oil.<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/irked.gif" style="border:0px solid;" title="irked">: Any suggestions for me? Seems like everything that would make him go, bungs him up instead i.e. applesauce, flax. He does eat an awful lot of fruit and veg, as well as beans and whole wheat bread. Any and all sug's taken!<br><br>
TIA!
 

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not sure i have much to offer, but here's dr sears' page on constipationn -- <a href="http://askdrsears.com/html/8/t081100.asp" target="_blank">http://askdrsears.com/html/8/t081100.asp</a> . hope your little guy can find some relief and you, too.
 

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We had some issues with our kid. Our Doc suggested coalase (an over-the-counter laxative/stool softener). It works great! even when some other products have failed :-( A friend suggested a _liquid_ suppository laxitive. I forget the brand, but we have not tried it.<br><br>
Talk with your dr again... to make sure you have the complete list of good and bad foods. Bananas, dairy products, amd rice are all on the "bad" list. We give soy milk to our kid instead of dairy milk.<br><br>
Also, try more and more fruits and vegetables. I have a friend who is an MD and very careful about her kids diet. They get HUGE ammounts of fruit at each meal, compared to any other kid I have seen. And this will really help the gut move things along.<br><br>
Sometimes, bribery has worked with our kid. Typical prizes are stickers or small toys.
 

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Well -my son has been chronically constipated for about 2 years now. He has some dysregulation between the smooth muscles of his bowel (now also stretched out secondary to the constipation) and the volutary muscles of the rectum. Prior to starting on any medication we did all the regular dietary stuff - which didn't help. Or, didn't help enough. We do limit dairy which seems to compound the constipation, and incorporate lots of whole grains and fruits. Fortunatly my son's favorite food is oatmeal.. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile"><br><br>
Initially when he was an infant he was on Lactulose, which is a artifical sugar that draws water into the bowel. It wasn't very effective and the dose was large and hard to get him to take the 3 or 4 tablespoons daily. Currently he is on Miralax - which is a flavorless powder that acts to draw water into the bowel (keeps the BMs very soft). I mix it with about 3 oz of juice first thing in the am and he drinks it down. I keep a daily log of his medication, number and texture of BMs, etc. We have a plan for adding additional medication (milk of magnesia, suppository (Dulcolax), or enema) depending on the number of days since his last BM x his misery level.<br><br>
Anyhow, I would encourage you to see a pediatric GI specialist if at all possible. I found the specialist hugely helpful - far beyond what the pediatrican (who is a good and helpful dr) could offer. It is important to do the dietary stuff, but with poor muscle tone you may need additional medicine to help. A GI specialist can assess exactly what is going on and should be able to help you develop a medication plan and treatment regime that specifically meets your son's needs.<br><br>
BTW - the GI specialist told us that the issue with dairy is the fat and the calcium - so even soymilk can be a problem, or orange juice with calcium if consumed with fatty food. And apparently low-fat or no-fat isn't any better since you'll still have fat in the foods that are eaten and calcium in the drink.<br><br>
Sorry to be so long winded - this has been a major issue in terms of dealing with the lack of BMs, the resulting crankiness, etc. Best wishes for your son!
 

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My daughter has some problems with her bowels due to lack of innervation so we really have to pay attention to make sure she goes on a regular basis. Fortunately, so far we have avoided medication.<br><br>
First, you mentioned applesauce, but that is actually bad for constipation. Apples and apple cider and good, but applesauce and apple juice are bad. Other bad for constipation foods are carrots, white rice, white breads, and most dairy (I'm not sure about yogurt as it doesn't bother my daughter).<br><br>
You mention flax and that was going to be one of my suggestions. We give my daughter about a teaspoon of flax oil or a flax oil/borage oil mix every morning and I think that really helps. I also highly suggest whole grains. I swear sometimes after a dinner of whole wheat pasta she's telling us she has to go within 15 minutes. I especially like whole wheat spinach tortellini as it gets the whole grain and roughage in there.<br><br>
Water, water, water. Try to get him to drink a cup of lukewarm water first thing in the morning and keep him drinking water throughout the day.<br><br>
It does sound like your son is eating lots of healthy foods so he made need some medicinal intervention. One thing that works well for us when she has gone for a day is Dulcolax suppositories. We use the regular adult ones, but we cut them into thirds. We do also find that it's very hard sometimes for her to push out the stool so we sort of have to help with the process sometimes. It's not a fun job, but sometimes that's reality with a special needs child. Definitely ask your doctor about some suggestions for approaching this problem in a long-term manner. You'll want to get a good bowel maintenance program established and that helps to maintain things on a day-to-day basis.
 

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One of my twins has been constipated since I can remember (she's almost 2 1/2). We have taken her to the pediatrician, the ER and a naturopath. None of them came up with a diagnosis other than, "yeah, some kids are just constipated." It might be TMI, but both their dad and I had the same problem as children. We use Fleet Babylax (it's a liquid glycerin suppository) when things get really bad. It's very gentle and works quickly. We've sort of made a ritual when we do it, so we dont' traumatize her too much.<br><br>
Good luck. It's really horrible to watch your child go through that.
 

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Discussion Starter · #7 ·
Thanks for the replies! I just spoke to his pt/ot team, and they feel that it is likely a muscle tone issue. My concern is very much lax. dependancy, but we really should see a GI specialist. We're lucky we live in Canada<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/love.gif" style="border:0px solid;" title="love"> Otherwise we'd be beyond broke. Awesome ideas, thanks again!
 
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